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$10K Cure Available?

A myHSteam Member asked a question 💭
Canada, CANADA

When I was first diagnosed with HS by a dermatologist (maybe 8 or 9 years ago), she told me there was a cure but it cost $10,000 CDN. Has anyone else been told this? I never did follow up with her, as she was rather dismissive and cold.

May 20
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Can Hidradenitis Suppurativa Be Cured? What You Need To Know Read Article...
A myHSteam Member

Hi, I’ve had HS for about 25 years. I have tried everything under the sun to help lessen my flair ups. I mainly have flair ups in my groin area which can make it very difficult and painful to walk.

I am happy to report I have not had a flair up in 15 months. This is what I am doing to keep the flair ups away.

1. I had certain bumps that would constantly come back, drain, never completely heal and then return again. I started applying heat to these areas (I had to do one at a time because of the soreness). I’m sure you can use almost any safe heat source but I chose to use the “hot hands” product. I could wear it under my clothes, the heat lasted for many hours and it did not become too hot. I continued to use heat until the infection was all out and the drainage was blood only. I would then disinfect the area and apply a band aid temporarily.

2. Since my flare ups are mainly in my groin area, I had to make a decision to stop wearing underwear. It created constant friction in the area and would almost always irritate my skin.

3. I started taking luke warm baths daily vs showers. This was a big adjustment for me because I loved my showers. Once I started with my baths, I could almost immediately tell a difference in my skin.

I honestly believe making these 3 changes is the reason I have not had a flare up in 15 months. I pray this information will help others. 🙏🏻

Much love XO ❤️

May 26
A myHSteam Member

What really!!

May 20
A myHSteam Member

Yes, everything that I have researched points to no known cure. This Doc had told my it was a medication.

May 22
A myHSteam Member
May 21
A myHSteam Member

I'm skeptical. No info about the treatment itself or who provides it...?

May 20

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