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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's A Common Misconception About HS?

By A myHSteam Member 42 answers

May Is Mental Health Awareness Month. Any Advice For Someone Newly Diagnosed With HS?

By A myHSteam Member 32 answers

What Are Your Top Tips For Dealing With HS In The Heat?

By A myHSteam Member 32 answers

How Does The Cold Affect Your HS?

By A myHSteam Member 34 answers
2268 questions

Is Anyone Else A Member Of The Hidradenitis Subreddit?

A myHSteam Member asked a question 💭
Portland, OR

I’m finding a lot of helpful advice there lately.

I Have This Maybe A Cyst On My Armpit, That It Flares Up When It Wants To. I Wash It Good And Put Some Clyndimacin And Gauze But It Doesn't

A myHSteam Member asked a question 💭
Woodstock, IL

Seem like it's working. Is there anything else i could use. I don't see my new dermatologist until February. Since I'm on Medicaid I can't see a doctor about this. Does anyone else have to wait months to see a dermatologist? TIA 🙂

A myHSteam Member

As it’s sods law we suffer and then when we get there it’s a little calmer x

September 12

Does Anyone's Health Insurance Cover Gauze Pads, Bed Underpass, Ointments, Abdominal Pads Etc?

A myHSteam Member asked a question 💭
Philadelphia Area, PA
A myHSteam Member

Yes, many health insurance companies cover wound care supplies such as gauze pads, bed underpads, ointments, and abdominal pads. Here are some steps to ensure coverage:

1. Ask Your Insurance Company… read more

September 11

Has Anyone Experienced Synovitis, Tenosynovitis, Or RA As A Comorbidity Of HS? My Doctor Is Expecting RA.

A myHSteam Member asked a question 💭
Little Rock, AR

Osteoarthritis and Polyarthralgia

A myHSteam Member

Yes, people with hidradenitis suppurativa (HS) are more likely to develop inflammatory joint conditions, including rheumatoid arthritis (RA). Studies have shown that individuals with HS have a higher… read more

September 11

Anyone Heard Of Pyoderma Gangrenosum?

A myHSteam Member asked a question 💭
Milton Keynes, UK

Just had my plastics consultation, he is hesitant to do a full excision with flap as he is concerned I could also have asking condition called Pyoderma gangrenosum ‘PG’ but wants me to get my dermatologist to verify this at my next appointment in October
So for now been booked in for de-roofing surgery just so I am on the books, but won’t be for a few more months. But all comes down to the results of PG
(The image of what was a single incision and drain, but my skin just keeps splitting and… read more

A myHSteam Member

@A myHSteam Member honestly i dont remember what i had. It was in 2015ish and i went through some...thangs (🍺) . I really dont remember alot from that time. But tbh i never had any knowledge or… read more

September 23

Anyone Stopped Then Started Taking Spironolactone?

A myHSteam Member asked a question 💭
Grand Rapids, MI

Im wondering if i should start it back up. Also anyone have experience taking that while on mental health meds like Zoloft, risperidone, trazodone?

A myHSteam Member

@A myHSteam Member im on trazodone as well due to severe insomnia. My physc doc prescribed it. My derm just isn't the most helpful anymore

September 11

I Have Been Dealing With A Lot Of Swelling Down There. Is There Anything That Helps The Swelling Besides Sitting On An Ice Pack All Day?

A myHSteam Member asked a question 💭
Yuma, CO
A myHSteam Member

I’m so sorry. That absolutely makes sense. I’m not sure why it gave me relief with this last one to just use the shower head on it. My bathtub is just too small for traditional sitz baths. I wish I… read more

September 17

Has Anyone Tried ACS 200 Silver-Glutathione Gel? A Friend Of Mine Said That’s What They Use And It Works For Their HS.

A myHSteam Member asked a question 💭
Pittsburg, CA

I Finished A 12 Week Course Of Lymecycline About 2 Weeks Ago But I'm Still Getting Recurrent Boils In My Private Area

A myHSteam Member asked a question 💭
Scotland, AR
A myHSteam Member

It's important to follow up with your healthcare provider if you're still experiencing recurrent boils after completing a course of antibiotics like lymecycline. Here are some steps and considerations… read more

September 4

What Should I Use For Itching On The Groin?

A myHSteam Member asked a question 💭
Yuma, CO

Sorry, I new to all of this and am itching on my lady parts and am wondering what I should use. I'll use A&D Ointment and get some relief for awhile, but it will start itching again. I wash and reapply and then this time it is not working. I wash and try some Good Clean Love Lube. Great relief, but again I'll start itching. Is this how it is supposed to be? Should I stick with the Good Clean Love and just keep washing and reapplying?
Thank You,
Kidcat

A myHSteam Member

I find the best way is to just wipe with a clean wet facecloth. Although I have bandaged alot, and with a bandage I don't get itching!

September 4
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