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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Could You Share Any Dietary Changes And Tips That Have Helped With HS?

By A myHSteam Member 33 answers

What HS Symptoms Keep You Up At Night?

By A myHSteam Member 51 answers

How Do Beverages With Caffeine Affect Your HS?

By A myHSteam Member 58 answers

What Are Your Top Tips For Dealing With HS In The Heat?

By A myHSteam Member 32 answers
2268 questions

Toilet Paper Brands, What Do You Use?

A myHSteam Member asked a question 💭
Yuma, CO

I have found that if I switch TP, I will have a flare. Does that happen to anyone else?
I have to have Cottonelle or I flare!
Thank You,
Kidcat

A myHSteam Member

I use Kirkland from Costco......over the years I have used other TP brands, but never noticed a change in my HS

September 4

Has Anyone Tried Birth Control To Help HS Symptoms And Did It Help?

A myHSteam Member asked a question 💭
Maryland, MD
A myHSteam Member

Yes, many members of myHSteam have tried birth control pills to help with HS symptoms, with varying results:

- Positive Experiences
- One member reported that their daughter is much better now… read more

August 31

For Those Of You And Humira, How Do You Feel Just Before It's Time For You To Do Your Next Shot?

A myHSteam Member asked a question 💭
Grand Rapids, MI

Just kind of wondering how people feel when it's a day or so before you shot is due do you start feeling funky or how do you feel for the first couple days after you take it

A myHSteam Member

Hi Coda. I use Humira and I don't feel anything the day before, the day of, during or after the injection. I have no swelling or soreness 😊

August 30

Embarrassed To Get Help.

A myHSteam Member asked a question 💭

So actually I have not be officially diagnosed, but I believe I’ve been struggling with this since puberty. However I’m embarrassed to see a doctor because the HS is on my buttocks. How do I get over the embarrassment to seek help? This has been a deep source of shame and embarrassment my whole life

A myHSteam Member

Sucks not sucka* sorry

August 29

Have Anyone Took Doxycycline For Hs? If So How Did It Do For You? About To Start Taking It Along With A Water Pill And Have Lotion For It.

A myHSteam Member asked a question 💭
St Louis, MO
A myHSteam Member

I was on it for a short period of time while trying to heal an open wound from HS. I think it helped a little bit, it does have an anti-inflammatory effect. But long term I don't think it would have… read more

September 9

Anyone Tried HRT To Help Mange Their Symptoms?

A myHSteam Member asked a question 💭
Grand Rapids, MI
A myHSteam Member

@A myHSteam Member and @A myHSteam Member I was on simlandi for about 4-6 months before I saw a big difference but it has not been enough for me and am now in the process of switching to cosentyx. I… read more

August 26

AIP Diet?

A myHSteam Member asked a question 💭
Grand Bay, AL

Women With HS, Do You Notice Flare Ups Before Or In The Early Days Of Your Period? Is There A Link?

A myHSteam Member asked a question 💭
Gambia
A myHSteam Member

Yes that is actually when I can tell I'm getting my period. There us definitely some kind of connection.

August 29

How Do I Go About Finding A Doctor Who Even Knows What HS Is? I’ve Been To Countless Doctors, Dermatologists And Homiopaths Who Have No Clue

A myHSteam Member asked a question 💭
Kamloops, BC
A myHSteam Member

I'm just curious as to where you are living? I'm in Washington state and it was actually my primary care doctor who suggested that I might have H.S. Sure enough, it was diagnosed by my dermatologist… read more

August 29

Which HS Symptom Surprised You The Most?

A myHSteam Member asked a question 💭
San Francisco, CA
A myHSteam Member

I wonder if it's the same for me. I'm 74.

October 12
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