Hidradenitis suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1775 questions
I’ve Used Humira And Most Recently Remicade (IV Treatments) With Very Little Success. My Doctor Is Going To Try Cosentyx. Any Thoughts?
A myHSteam Member asked a question 💭
A myHSteam Member

This is exactly what has happened to me. Just took my 1st injection of cosentyx on Friday

posted 12 hours ago
Has Anyone Tried Vicks On A Boil? Does It Work? Is It Safe To Use?
A myHSteam Member asked a question 💭
A myHSteam Member

It helps reduce the swelling upto an extent. But don't expect it to magically cure it.

posted 18 hours ago
How Do Any Of You Treat HS Nodules On Your Buttocks? I Feel Like I'm Sitting On Shards Of Glass.
A myHSteam Member asked a question 💭
A myHSteam Member

I had surgery, it was awful tho

posted 2 days ago
What Do People Clean Their Lesions With When They Are Open, Ie Right After Eruption?
A myHSteam Member asked a question 💭
A myHSteam Member

My wound care nurse recommended plain soap and water. If I'm really concerned about an infection I'll use hibiclens. Then I put Medihoney wound gel over it and cover it with nonabsorbent gauze.

posted 1 hour ago
Hi All, Humira Or Infusions? Which Have You Had The Most Success With? Thanks, Thomas
A myHSteam Member asked a question 💭

Moderate to severe HS

A myHSteam Member

Hello Thomas,

Humira (adalimumab) is typically administered through subcutaneous injections, either every week or every other week after an initial loading dose. It is available as a single-dose… read more

posted 3 days ago
How Do I Become Intimate With A Person With This Mess Of A Body?
A myHSteam Member asked a question 💭

After my late husband, I have not had an intimate relationship because of fear, shame and anxiety. It’s been years and I’m so lonely. I don’t know how to move forward…

A myHSteam Member

I fear that humiliation. I’m so sorry you have to go through this…

posted 3 days ago
Does Anyone Use Humira To Help With HS? It Says Can Cause Cancer Is Why I'm Asking
A myHSteam Member asked a question 💭
A myHSteam Member

Yes, Humira (Adalimumab) is indeed used to help manage Hidradenitis Suppurativa (HS). It is the only biologic medication approved by the U.S. Food and Drug Administration (FDA) specifically for HS… read more

posted 3 days ago
Hibiclens Use?
A myHSteam Member asked a question 💭

This will be the first time that I am using it what is the best recommended way to make sure I'm not using too much?🧐

A myHSteam Member

Hello Everyone, I'm new to all this where can I get some.?

posted 13 hours ago
Itching
A myHSteam Member asked a question 💭

Hi everyone, does anyone else get itching in spots that are not flaring? It’s been a few days and it’s awful. What do you do to get rid of it??

A myHSteam Member

Cortisone cream or an over the counter antihistamine

posted 3 days ago
Does Anyone Else Have An Issue With Caffeine Causing Flare Ups?
A myHSteam Member asked a question 💭
A myHSteam Member

not me

posted 12 hours ago
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