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I’ve seen a lot of posts talking about how they realized certain things were triggers (sugar, dairy, gluten, etc.) for their hs. If this is true for you, how fast after being exposed to your trigger do you develop nodules? Hours? Days? Lmk! Thanks! ☺️
It depends on the type of food. If I eat a white potato/French fry i automatically start to feel the burn/pain in my open wound areas. With dairy, within an hour I feel the pain. If something else… read more
Hi Sue, I find that dairy, sweets, yeast and nightshades make my HS really bad. If I ever have them the damage is irreparable and I end up having to go through surgery to drain it. I stay away from… read more
I’m sure this question has been answered. Anyone ever had a total hysterectomy, uterus, ovaries fallopian tubes removed and seen an improvement with HS? I know my triggers are food AND hormonal.
If you think your root cause is hormonal, consider asking your doctor about taking Spironolactone. Has worked wonders for me so far, in addition to diet/supplementation. There are research studies… read more
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
I'm not
I agree with Bonbon that dieting isn’t for everyone what I found works best for me is exercising once a day shower right after of course and watching what I eat. I think of dieting a new lifestyle for… read more
My question for you is ? What is the worst part of your HS . I know the answer is all of it but what is the one. The pain, scars,mental stress, or the smell? For me it's all .But the smell is it for me I've had this shit for 30+ years and the every day pain I guess is something I've got used to over the years and the scars really don't bother me but I do feel bad for you ladies and the mental is I will not let HS defeat me I will fight this shit until there is a cure or until they put me in… read more
I've noticed if I keep my hair down there trimmed up the pain and the smell aren't so bad..
What foods normally trigger your HS and is a certain food more triggering for you to eat than others? For me right now it's potatoes but I'm watching for more.
Malee.....keto works for me, but not for everyone......I feel so lucky I have found my trigger.....I would suggest you try.....you will know within 2 weeks if it works for you. If it doesn't work… read more
I’m doing well for a cool day. Thanks for asking and how are you?
Hi all, I am new here and wanted to get opinions from people taking Doxycycline Hyclate 100mg daily for long term control of your HS. I am concerned about the long term use of it on my gut and all that it does & destroys within the stomach and elsewhere in the body. I was taking it daily for 6 months and it kept my flares to maybe 1 or 2 during that time. I stopped taking it about 4 or 5 months ago and all was good with HS flares. Now in the last 3 weeks or so I have had 2 flares so far.
Also… read more
Bill, I should add that I am in remission now because I am on the keto diet.....it's a tough one at first.....no sugar and no carbs (potatoes, pasta, breads and rices). Let me know if you want more… read more
