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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Approved For SSI Due To HS Diagnosis?

A myHSteam Member asked a question 💭
Gastonia, NC

Since I have been diagnosed with HS keeping a job has become somewhat difficult.. with me having constant flair ups and sometimes the difficult task of wearing clothes that are appropriate I have lost jobs? Does anyone relate

October 6, 2019
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A myHSteam Member

I had this previous issue at my old job. The best thing to do is get a form called FMLA this gives you a certain amount of days that you're able to be absent from work due to your condition and your job cannot fire you or lay you off with this form.

January 4, 2020 (edited)
A myHSteam Member

I get constant flare up and my job requires constant arm movements. Sometimes it's so swollen I can't work. I applied and was given FMLA. I took intermittent FMLA so I don't get in trouble for calling off but I can also keep working. I think not enough people are aware of hs for a lot of people to receive SSI for have but I was wondering the same thing.

October 12, 2019
A myHSteam Member

I myself have almost lost my job due to hs flare ups, people jusy dont understand the pain it actually causes! Fortunately i am lucky enough to be employed in a place where they tried to understand ( also i have no shame in whipping out my armpit to show them) my employer that i have been with tokd me to go to my family doc and get a doctors note to excuse me for unexpected absences due to medical issues. Which i did and for that reason i have not lost my job. However HS and missing time from work due to flare ups has. Causes me to miss out on opportunities for advancement in the company :(

October 7, 2019
A myHSteam Member

I can so relate omw I was constantly out of work and was such an issue that I'm so grateful I found a job that requires me to work from home so less stress as well

December 28, 2019
A myHSteam Member

Yes. Totally. And it doesn't help when you have a flare up affecting underarms and your selfish bosses say come on, just work through it. They don't understand the pain you feel, and when you try to explain, your told you're useless.

October 7, 2019

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