Hello All! Have Any Of You Used Humira For HS? If So, Did It Help Or Make It Worse?
I have replied to this before. The Humira did help me with my h.s., but now I have Paltomiplanter Psoriasis on the soles my hands and feet. This Psoriasis worse than h s. It is very debilitating Taking Skyrizi for it, but have only done the first initial doses. It is 11 and a half weeks before I can take the next shot. Very frustrating. Psoriasis can cause PSA, Psoriasis with Arthritis. I have not been diagnosed with that yet, but have twisted my knee do have to go see about that. It shortens the lifespan of most people 5 years just from having it. I saw another person on here who took the H drug and now has Lupus. To each their own decision, but I wish I never would have taken any of H drug. Pic of hands.
I'm sorry, I'm just seeing your message. My HS is Stage 2 and I have it in the groin and I have had one in the Anal area.
TODAY- August 25, 2023
Tina856
Hello members,
I hope you are doing well and in good spirits. This is my first day in this community. I have a mild-to-moderate case of HS and usually take oral antibiotics or have had minor incisions or drainage. But I am scheduled to have my very first HUMIRA injection on Aug 30. I am wondering if anyone can shed light on HUMIRA. Successes on efficacy? I am weary and have mixed emotions because I have read feedbacks from HUMIRA site and some are very good but also have seen information that this injectable medication has caused 0.11 % serious effects, lymphoma, tuberculosis etc. If anyone can please share some information on the use and effects (positive/negative) from HUMIRA would be very helpful and greatly appreciated.
Thank you, Cristina
Fatima2 β RESPONSE
Hi Cristina.
I have been on Humira since August last year (2022). I do the injections in my stomach only. I have had no problem with Humira. I have had about 3-4 flares since taking Humira and the flares are very mild and lasted a couple of days. I have had a couple of flares that started to come but had disappeared the next day. Most of the time, it's like I never had HS.
Tina856
Hi Fatima,
thank you so very much for responding and sharing very useful information. I was a bit frantic and became somewhat overwhelmed. because the official website of HUMIRA even ha d a pop-up message for me to give attention to. "Important Message" basically informs users that there are severe and even fatal adverse effects such as Tuberculosis and Lymphoma etc. Unfortunately, they did not provide statistics, so I did my own research in other medical studies in google that said those severe cases are about 0.11% out of 40,000 patients included in the study. An Ambassador Nurse from AbbVie (manufacturer of Humira) gave me a call today and she said she will let another unit in their company provide to me via email the statistics.
I am 80% happy with your response because of the mildness of the reoccurrence but 20% sad that it still came back with 3-4 flares since August 2022 when you began taking Humira. Is it ok if I ask if your case is mild-moderate-sever? and it which areas did it reoccur in?
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