I was reading an article /research summary on HS foundation today and it talked about a mutated gene. I'm not sure our parents could've done anything about it. Do you ever think, or pray my kids don't get this? I did, and both of my daughters have it. Now, I worry about my grandkids getting it. I'm going to try to leave a journal about HS and the foods I est, the things I do, the treatments etc .. for when I'm gone.

I used to think about this when I was younger, of course I didn't know it was HS or why I got it, or anything about it. Still don't know really. My mom and dad never had it. Maybe someone else along the lines. Just like Asthma, I was diagnosed at 16 (when I started smoking) my half older sister had it from birth. My baby daughter had it very bad, always in ER, almost died at 8 months. She outgrew it unless she has bronchitis or pneumonia. Her son had it severely in and out of hospital all the time. For days, not just ER like her. Her daughter has it mildly like me. I guess my dads dad died in an oxygen tent, when dad was 5. So... it is hereditary. My half sister's kids have it. My full blooded sister and her two kids didn't get it. My dad passed of Emphysema and Sepsis.
My mom had a boil twice in her life, the real ones that actually have white heads and pop in a decent time frame. On the back of her legs when she was in her teens. 15/16. Nothing like we all have. She felt empathy for me my whole adult life about my HS. She was ecstatic when I found out a real name to it. She was the first person I called. As she got older, she had fibromyalgia, type 2 diabetes and she eventually passed Jan 20th of pancreatic cancer, same as her Mom, my grandma. Not genetic, as she was tested, but environmental. And that's a whole other story. My dad maybe had a real boil in my lifetime once that I can remember. He was so skinny. And smoked like a freight train, alcoholic. Mom was obese her adult life as well, never smoked.

Anyway, I just feel this is how I was born. My daughters both have it. My oldest is 31 and has Stage III, like me. Hers is hormonal, like me, as hers stopped with both pregnancies. I had 1 on my face giving birth to both of my girls. That's it tho.
My youngest is 26 and has probably stage I. She hasn't been formally diagnosed yet. She just developed it. 😭😭 I thought she was free if it. Hopefully, hers will stay mild and easily treatable. We shall see. My oldest, was on humira and told me about it, it didn't work long for either of us. I'll be praying for you. If you need to talk. I'm here. Big hugs my friend.

My mum has other autoimmune disorders so I am assuming there's something genetic at play. Unfortunately for me I'm the only one with HS in the family!