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Clinical Trials

A myHSteam Member asked a question 💭
Lufkin, TX

Paid Lufkin TX

July 16, 2023
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A myHSteam Member

Here are some key points about clinical trials for hidradenitis suppurativa (HS) based on the provided knowledge base:

- Goals of Clinical Trials
- Determine the safety and effectiveness of new medications.
- Identify the best dosage for existing or new medications.
- Compare new treatments with existing ones to see Show Full Answer

Here are some key points about clinical trials for hidradenitis suppurativa (HS) based on the provided knowledge base:

- Goals of Clinical Trials:
- Determine the safety and effectiveness of new medications.
- Identify the best dosage for existing or new medications.
- Compare new treatments with existing ones to see if they are better.
- Assess if new treatments cause fewer side effects.
- Help those who haven't responded to other treatment options.

- Current Research Topics:
- Low-dose radiation.
- Botulinum toxin (Botox) injections.
- Mental health support through mindfulness programs.
- Discovery of the root causes of HS.

- Finding Clinical Trials:
- Look for studies on ClinicalTrials.gov.
- Ask your healthcare provider about suitable trials.

- Placebo Information:
- Participants will be informed if they might receive a placebo.
- In some trials, if the investigational treatment is highly effective, it may be made available to all participants.

- Safety and Monitoring:
- Clinical trials are designed to minimize risks.
- Participants are closely monitored for safety and potential benefits.
- The informed consent process allows participants to ask questions and discuss the trial with their doctor and family.

- Costs and Coverage:
- Costs are usually covered by the sponsoring company or organization, along with health insurance.
- It's important to ask about costs, including medical expenses and long-term aftercare.

- Phases of Clinical Trials:
- Phase 1: Focuses on safety, dosage, method of taking treatment, and side effects.

- Benefits of Participation:
- Access to new treatments and therapies.
- Contribution to research that can help others with HS in the future.
- Ensures diverse representation in skin disease research.

- Coordination with Usual Care:
- Participants usually continue regular follow-ups with their dermatology providers.
- The trial treatment does not replace comprehensive healthcare.
- Coordination between your doctors and the research team ensures compatibility with other medications.

- Community Support:
- On myHSteam, a social network for people with HS, members share experiences, ask questions, and give advice.

For more detailed information, you can refer to the article "Clinical Trials for HS: 6 Facts To Know" on myHSteam.

July 10

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