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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Get Over The Insecurities Of Becoming Intimate Again? I've Been Single A Long Time And Kind Of Want To Date Again. But Scared?

A myHSteam Member asked a question πŸ’­
Melbourne, FL
January 28
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A myHSteam Member

Hi there! I am sorry that you are going through this. Don't feel alone. I've been single for 5 years as well and have a real hard time trying to explain the disease and or finding someone who actually understands what it is. Most people think acne is from poor hygiene which is not at all what HS is. You'll find the right person who will love you for you and who educates themselves with what the disease and what it really is.πŸ™‚ If I have hope, I'm sending you the same. There are still good people in this world. We just haven't met or bumped into them just yet. πŸ˜€πŸ₯°

January 30
A myHSteam Member

I think when you feel the relationship is serious enough, you just share the information with the other person

January 28
A myHSteam Member

Hi Nichol, I doubt you want to hear my response but it’s a choice. I have been non intimate for about 7 years. 🫀😳🫣
I tried hiding it but we all kno no matter how hard we try , things just pop up. So instead of being made to feel dirty, or less than I chose to be alone. I do however miss the intimacy but not the sex. You are a lot younger than me so I’m quite sure if you find The Right Person you will kno.
Hugs πŸ₯°πŸ˜˜

January 28
A myHSteam Member

It's completely normal to feel nervous about dating and intimacy, especially with hidradenitis suppurativa (HS). Here are some tips from the knowledge base:

- Start with Self-Relationship: Focus on your relationship with yourself. Think about what kind of touch or textures make you feel good
- Open Communication: Ease Show Full Answer

It's completely normal to feel nervous about dating and intimacy, especially with hidradenitis suppurativa (HS). Here are some tips from the knowledge base:

- Start with Self-Relationship: Focus on your relationship with yourself. Think about what kind of touch or textures make you feel good.
- Open Communication: Ease into conversations about HS with potential partners. You don't have to tell the whole story upfront.
- Seek Professional Help: Speak with a mental health professional if you're experiencing self-esteem, body image issues, anxiety, or depression.
- Remember You're More Than HS: Many people with HS have found understanding and loving partners. There's more to you than HS!

For more detailed advice, you can visit the resources provided in the knowledge base.

July 26
A myHSteam Member

I completely understand though. I've had sex once in the past 5 years. I don't necessarily miss the sex as I've went so long without it I've kind of lost that drive or need. But I definitely miss the intimacy part of being with someone. The odor alone makes me not even want to hug someone as I worry they can smell it too. Let alone explaining scaring or current flare ups.
I appreciate you responding with positivity to my future possibilities. I hope we both can find that intimacy we both miss

January 28

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