Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Diagnosis & Information Managing Your Condition Treating HS All Resources
About myHSteam
What is This Site Terms of Use Privacy policy
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do One Be Intimate Without Worrying About The Odor Or Someone Seeing The Infected Sight?

A myHSteam Member asked a question šŸ’­
Hampton, VA
April 14
ā€¢
Be the first to like/hug
A myHSteam Member

It's very hard. I just tell and send that person a pic and let a person know it's not contagious.

April 15
A myHSteam Member

I think educating others and being transparent are the important things. I used to be embarrassed to talk about it and now Iā€™m not sure why.

April 14
A myHSteam Member

I lost the love of my life because of HS

April 14
A myHSteam Member

Thank you

April 14
A myHSteam Member

To manage concerns about odor or visibility of affected areas during intimacy when living with hidradenitis suppurativa (HS), consider these steps:

1. **Open Communication**: Start by having an honest conversation with your partner about HS, explaining the condition and how it affects you. This can help set realistic Show Full Answer

To manage concerns about odor or visibility of affected areas during intimacy when living with hidradenitis suppurativa (HS), consider these steps:

1. **Open Communication**: Start by having an honest conversation with your partner about HS, explaining the condition and how it affects you. This can help set realistic expectations and build understanding.

2. **Focus on Comfort**: Engage in sensory experiences that make you feel comfortable and confident. This could include wearing clothing or using bedding that feels good against your skin and doesn't irritate your affected areas.

3. **Highlight Preferred Touch Areas**: Share with your partner which areas of your body you enjoy being touched, steering clear of sensitive or affected spots. This can enhance intimacy without focusing on HS-affected areas.

4. **Manage Symptoms**: Prior to intimacy, consider using recommended topical treatments or gentle cleansing routines to manage odor and discomfort. Always consult with a healthcare professional for personalized advice.

5. **Explore Alternatives**: Intimacy isn't solely about physical touch. Explore other forms of intimacy, such as verbal communication, shared activities, or emotional support, that can strengthen your bond without physical strain.

Remember, intimacy is about connection and comfort. By focusing on what feels good and maintaining open communication, you can navigate concerns about odor or visibility and enjoy fulfilling intimate moments.

April 14

Related content

View All

What If Hormonal Therapy Isn't An Option Because The Person In Question Is Still In Remission From Breast Cancer And Is On Tamoxifen

A myHSteam Member asked a question šŸ’­
Northern Ireland United Kingdom
April 23

Also, If You Are On HUMIRA, That Is The Medication You Are Currently Taking. Have You Seen Any Weight Gain With That?

A myHSteam Member asked a question šŸ’­
Cincinnati, OH
September 12

Hello, I Just Started My First Treatment With Humira, If You Have Been Taking The Medication Humira, Have You Seen Results Of Improve?

A myHSteam Member asked a question šŸ’­
Cincinnati, OH
September 12
7 Symptoms of Hidradenitis Suppurativa
Intimacy and HS: Communicating With Partners
Telling White Lies
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in