Ashley, Mostly that it is a progressive disease. It may or may not spread to other parts of the body, but it becomes a part of your life. Also, the lack of knowledge of most doctors and dermatologist. I was 🤔 told that it was a hormone problem and would go away after menopause. It did not. It hurts you mentally and physically. I have learned to use CLn body wash, aloe vera, or hibecleanse and do not scrub the area. Use your hands or a very soft scrunchie. I use Clindamycin topical on lesions, but in the groin it is still very hard to bandage it. I intend to try this my magic healer that ppl keep talking about on here. Never give up and you are not this disease and it is not your fault.