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Is There A Link Between Hidradenitis Supprativa & Angioedema

A myHSteam Member asked a question πŸ’­
Starkville, MS
September 29, 2024
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A myHSteam Member

Protestrone. πŸ˜†

December 18, 2024
A myHSteam Member

Thank u for breaking that down I have a cousin who has HS & went to get allergy testing done & found out she has angioedema. I was wondering why I started swelling in my face sometimes my tongue & sometimes my lips. One day I reached out to her bc she was on social media with lots of benedryl & said she keeps it on deck it has become her best friend. So I said why do u get boils she said yes that's HS me & my 3 sisters been dealing with this since we were young. She doesn't take anything for it anymore she say she trys to keep it dry. Her oldest sister have had 10 surgery's it came back worse each time. The baby sister just deals with it. These are my 3rd cousins. None of my immediate family has it. I now try to do nothing but take ibuprofen & wash my body all the time. I got tired of feeling like an project for doctors. I stay prayed up hoping one day someone will finally help instead of feeling like they can't make money off of us besides office visits & surgery's.
Lord cover all us HS warriors we need a healing for our mind body & souls. Thank u friend. Please keep me informed as u find more things out for us.

December 16, 2024
A myHSteam Member

Hey no implants or tattoos

December 20, 2024

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