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Does Anyone Else Have Huge Cysts Under Their Skin That Just Never Go Away? I’m Starting To Worry This Might Not Just Be HS.
I have them on both ankles mine is so bad I need a skin graph but I have not been giving any meds for treatment
Does Anyone Have Boils Fill Up With Blood Rather Than Pus?
I am finding a repeating pattern of having boils that go large and firm with pus and then go down and fill with blood. They don't ever burst but the skin is very thin and very painful. I'm also experiencing very large oval shaped boils which feel deep under the skin but never seem to surface. I just wondered if others experience anything like this?
Yes, many people with hidradenitis suppurativa (HS) report that their boils fill up with blood rather than pus. Here are some key points:
- Variability in Lesions: HS lesions can vary greatly. Some… read more
Does Anyone Feel Tired 24/7?
I feel tired all day every day and I'm not sure if it's related to HS or not. I can't ever name a time where I feel energised. However I feel tired whether I'm having an active flare up or not - it's just constant. Does anyone have this as well, I believe I read HS is commonly associated with chronic fatigue syndrome so was curious if I should get myself checked out.
Yes I too am always tired, full night sleep, tired, nap in day still tired. I just don’t ever feel rested. And like you not energised to tackle shit that needs doing, whether in a flare up or not… read more
Does Anyone Have Hs On Their Labia?
I have had hs since I was 13 am now 30 and progessing.. I actually never even heard of hs until recently.. I've been told my entire life by doctors that it's just acne and to use foot powder smh, and to take better care of my hygiene and blamed me.. so I just kinda dealt with it my entire life. I have them on my arm pits, under breasts, thighs, and now on my labia! I had a golf ball sized flare up on my labia drained in the er a few weeks ago. I never had a flare up inside on my labia before… read more
Hi everyone can I just ask is it the labia majora or the labia minora where you have all had a flare? I get them on the labia minora but there's no info anywhere about it
Is There A Link Between Hidradenitis Supprativa & Angioedema
Hey no implants or tattoos
I Have Just Been Diagnosed. I Have An Armpit Flare And I’m Wondering If All Such Flares Should Be Drained Or If They Could Heal On Their Own
My first ,obvious, flare was in the armpit. I now have a large scar and pores that sometimes weep. To answer your question.. yes. They do sometimes heal on they're own. You'll start to recognize your… read more
Relationship Advice
I'm 26 I started having hs thanksgiving last year while a few months pregnant.its been awful so far no doctor help getti g bounced from doctor to doctor I see a dermatologist the 10th so hopefully I get some clarity but as of now my relationship is falling apart becuz of hs it sucks and nothing I can do about it anyone experience this? Feeling crappy
For relationship advice related to hidradenitis suppurativa (HS), here are some key points from the knowledge base:
- Communication is Key: Open communication with your partner about HS can help… read more
Does Anyone Have Any Experience With Cosentyx As A Treatment?
I was on humira for a few months seemed to work decently. Then got switched to the biosimilar because insurance obviously and my dermatologist has agreed today that it does not seem effective so I'm doing the onboarding doses of cosentyx the next couple weeks hoping for improvement and insurance approval if everything goes well
Did Anyone Develop HS After Covid Shot Or Have A Really Bad Flare?
I started having recurring pimple like boils in groin either right before or right after my 1st covid shot. I can’t remember the exact date because at first they were like pimples that popped didn’t hurt and went away quickly and I didn’t even notice I had one until it popped. But my last pimple like boil on pubic won’t heal completely and I got that one after the vaccines. I had never had a sore in my life that would not heal. I think I may or may not be having mild lymphedema. Well here is a… read more
Did anyone responding to this question get liver disease after Covid or Covid shots? I’m battling liver issues and my endocrinologist said there was an explosion of liver disease after Covid. Don’t… read more
Does Anyone Know Of A Good Home Remedy To Stop The Itching And Burning?
I tried bleach baths and the tee treat oil never again I will try I even tried apple cider vinegar 😞 do not try that it burns so bad
There are several home remedies that might help with itching and burning from hidradenitis suppurativa (HS):
- Warm Compresses: Applying a hot, wet cloth to the affected area can soothe pain and help… read more
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