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Humira Or Not? If There Is Anyone On Here Who Took Humira And Got Off Of It And Did H.s. Get A Lot Worse?
My blood work was normal the doc said. But, it was getting where when I took the shot it made me sick. I had went through two staphylococcus infections. I took myself off. Hope it will not cause a trainwreck, Lol He put me on monocycline or monocin. I having got it yet, so not sure of name.
Bonbon, Yep sure am, but try to take it a day at a time. Thanks for the support sweetie. 🤗 hugs back
How Does Anyone Work Out? I Just Got Diagnosed And I Am A Hot Yoga Girl
I had a glorious 2 weeks of bike riding until this flare showed up last week😡
Anyone Heard Of Pyoderma Gangrenosum?
Just had my plastics consultation, he is hesitant to do a full excision with flap as he is concerned I could also have asking condition called Pyoderma gangrenosum ‘PG’ but wants me to get my dermatologist to verify this at my next appointment in October
So for now been booked in for de-roofing surgery just so I am on the books, but won’t be for a few more months. But all comes down to the results of PG
(The image of what was a single incision and drain, but my skin just keeps splitting and… read more
@A myHSteam Member honestly i dont remember what i had. It was in 2015ish and i went through some...thangs (🍺) . I really dont remember alot from that time. But tbh i never had any knowledge or… read more
Has Anyone Been Approved For SSI Due To HS Diagnosis?
Since I have been diagnosed with HS keeping a job has become somewhat difficult.. with me having constant flair ups and sometimes the difficult task of wearing clothes that are appropriate I have lost jobs? Does anyone relate
I had this previous issue at my old job. The best thing to do is get a form called FMLA this gives you a certain amount of days that you're able to be absent from work due to your condition and your… read more
Hi, Has Anyone Considered Changing From Humira To Cosentyx?
Currently Have A Channel Quite Inflamed In My Armpit Causing A Lot Of Pain
The pain is making it impossible to sleep I’ve only got paracetamol and ibuprofen. I was diagnosed in 2021 but have revived little help some antisocial wash and antibiotics for a week since then I’ve been managing the condition alone at home (both armpits affected) I’ve never been in this much pain before anyone have any tips
I can understand that chronic pain and feeling like the only one. Look for a dermatologist that understands and a general surgeon who knows or can recommend someone
Keep talking here and reading as… read more
Im Trying To Figure Out For The Life Of Me Why? Why? Why Are These Doctors So Quick To Cut /surgery On Us When They Know It Comes Back Worse
Find a doctor in this list. Someone who will work with you and truly understands the disease. Let them lead in you what to do. I have had CO2 laser surgery by Dr Resnik and Dr Hazen. Most effective… read more
Underarm HS
I am so tired of all these flare-up my life hasn't been the same my HS got worst when I got older. I am tired being in pain under my arm 😪
Anyone Got Any Remedies For A Major Flare Up
Draining it is a good thing that's the only way to get these things to finally go away is to get them out completely and with them being tunnels that he can go very very deep in fact the smellier is… read more
Any Suggestions For New Or Uncommon Treatments??
Hello! I've suffered with HS for about as long as i can remember, i didnt get diagnosed until age 18 though because i refused to go see a doctor as i have acne anyway so i assumed thats what it was. i am currently 23 and i still suffer with severe HS along with cooccuring Pyoderma gangrenosum. ive tried birth control pills, antibiotics, biologics, vitamins, diet changes, lifestyle changes, antibacterial soap, ive even had mini unroofing, and unroofing procedures done and nothing ever helps… read more
Omg girl I am so sorry to hear all that. I'm sorry I don't have any answers for you but I just wanted to say I wish you well and I pray things get better for you!
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