Below the surface, living with hidradenitis suppurativa (HS) can mean days spent in bed, missed appointments, and alternate days when we seem "fine." There's so much more to HS than meets the eye. We know that HS comes with hundreds of possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't see the many symptoms we experience.

On myHSteam, the social network and online support group for people living with hidradenitis suppurativa, thousands of members discuss the chronic nature of the disease and its hidden symptoms. Throughout the year we will share themes we see come up time and time again on myHSteam. We chose the image of an iceberg to represent HS symptoms because the life-impacting implications of an HS diagnosis aren't obvious on the surface. Please share to spread HS awareness!

This list is by no means exhaustive. What symptoms would you add?