Dealing with hidradenitis suppurativa (HS) can be challenging, but getting the care you need shouldn’t be. Telehealth has become a valuable tool, offering easy access to healthcare providers from the comfort of your home.

Telehealth, or telemedicine, lets you consult with your healthcare provider or dermatologist through your computer or smartphone — without visiting their office. If you’re considering telehealth for HS, knowing what to expect can help you prepare and feel more comfortable.

With telemedicine, you can:

• Schedule a video call with your healthcare provider or dermatologist for a consultation.
• Chat with your healthcare provider or dermatologist to share concerns or describe symptoms.
• Send images or texts about your condition via email or a secure patient portal.

Telehealth also lets you discuss safety measures, symptom management, treatment options, and lifestyle changes. By learning how to use this tool, you can save time and take proactive steps toward relief and improved wellbeing. Whether you need a diagnosis, follow-up care, or pain management tips, telemedicine can provide the support you need.

Benefits of Telehealth for HS Support

Telehealth can be a game changer for people with hidradenitis suppurativa, especially when it comes to accessing care. Many people with HS struggle to find dermatologists. Telemedicine bridges this gap by offering remote consultations, eliminating the need to travel. This makes it easier to stay connected with your dermatologists or other healthcare providers and ensures consistent monitoring and care.

Here are some of benefits of telehealth for managing hidradenitis suppurativa:

• Improved accessibility — Telehealth makes it easier to connect with dermatologists, especially for people in remote or underserved areas.
• Flexible and convenient appointments — Telehealth allows for consistent follow-ups and quick adjustments to your treatment plan.
• Improved communication — Regular check-ins with your healthcare provider can provide ongoing support and communication.

One myHSteam member shared, “I had a telehealth appointment yesterday morning with a nurse practitioner who actually knew what HS was. I was literally shocked!” They added, “Here is an NP who knew what I was going through and even prescribed doxycycline hyclate for me. Now, it’s only been 18 hours since I started taking it, but this morning I woke up and there was no pain, which is pretty unusual for me. I’m cautiously optimistic that I am finally getting some relief.”

Limitations of Telehealth for HS

While telehealth offers many advantages, it can’t replace all in-person visits with your dermatologist. Some aspects of HS care, like physical exams and medical procedures, require face-to-face appointments.

If you notice unexpected changes or your symptoms worsen, you should see your dermatologist in person. This will help them provide the best care possible. Here are some limitations of telehealth for managing hidradenitis suppurativa:

• Precise evaluation — Because HS is a skin condition, doctors often need to see and touch (palpate) your skin in person. Your doctor might not be able to understand the severity of your condition through a screen or photos.
• Inability to see private body parts — Some people feel uncomfortable showing private areas like the groin, buttocks, or breasts on camera or in photos. Since HS often affects these areas, this can make it harder for doctors to assess your condition and plan treatment.
• Technical problems — Unstable internet connections or low-quality video can limit the effectiveness of telehealth appointments. A good camera and strong internet connection are essential for clear communication and accurate diagnosis.

What Do You Need for Telehealth to Work Successfully?

To make telehealth effective, you’ll need:

• Digital communication tools — Use a computer, smartphone, or tablet with video and audio capabilities. If you’re showing sensitive areas, make sure you’re in a private space. High-quality tools are important for clear communication and an accurate diagnosis.
• Internet connection — You want to make sure your internet connection is reliable so that your consultation isn’t interrupted.
• Telehealth platforms — These secure applications or websites are designed for virtual consultations, appointment management, and patient records. They ensure confidentiality and compliance with healthcare regulations.

Telehealth can help you access treatment more easily and stay on track with your care. It improves healthcare access, bridges geographical gaps, and provides timely medical expertise.With telehealth, you can take steps toward living your best life.

Talk With Others Who Understand

On myHSteam, the social network for people and their loved ones living with hidradenitis suppurativa, more than 46,000 members come together to ask questions, give advice, and share their stories with others who understand life with HS.

Have you used telehealth to find support for HS? How did you find the right specialist? Share your experience in the comments below, or start a conversation by posting on your Activities page.