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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have A Seat? (Got Your Attention Huh)

A myHSteam Member asked a question šŸ’­
Dallas, TX

Here we go to all of my HS family depending on where your HS is when you sit down do you sit down easy And gently find the rite spot that doesn't hurt to bad and someone comes up to you and ask is everything ok well for me I lie and say my back is hurting because it's a pain in the ass to tell them what's really going on and if I have to sit for a long time that can get to be torturous for me don't get me wrong I'm not embarrassed of my HS (I use to be) but sometimes it's just easier to tellā€¦ read more

January 14, 2023
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A myHSteam Member

What a hell of a life it is, say no to wood...

January 14, 2023
A myHSteam Member

Hi Eddie. I know what you are talking about and how you are feeling. I don't have that problem now but I did and you know what? I was sooo happy that I didn't have to go anywhere at the time until that flare healed. It's bad when you hurt so bad you can barely walk from the lesions in that area. I pray for everyone with this dreadful disease. It's too much but we have to be strong. Take care Eddie. Know that I'm praying for you and the Team. Be blessed and stay safe. šŸ˜€

January 14, 2023
A myHSteam Member

Cand, That is truly nuts! Nutty as squirrel turds. A so-called doctor that doesn't believe in h.s. I am also curious like Bonbon. What does he think you have? H.S. exist whether he is from money or poor.

February 3, 2023
A myHSteam Member

Iā€™m with my friend Bon Bon-

I also say, ā€œIf heā€™s a doctor, where did he go to med school? In a swamp?ā€ HS is a true, painful, frustrating, disabling at times, and a physical condition that causes physical pain, but in my opinion, also with depression and anxiety which I think can become worse at times, especially when our HS abscesses go into remission and keep coming back and back and back.

Iā€™ve lied about it before, too- first I was mad at myself for lying but then also felt like I had the right to say what I wanted without offending the person.

I said the same thing to a few people that you did.

Iā€™ve been known to say Iā€™m in pain but I donā€™t overly explain like I did when first diagnosed in 2016.

I only share with yā€™all here online or very close friends.

My heart and hands lifting you up right now, Eddie- prayers being sent-

February 2, 2023
A myHSteam Member

I was walking with crutches once and got tired of explaining. Someone asked what I had done to my legs. Actually I had spinal stenosis damaging some nerves and trouble walking. So I just said,ā€Normal old age stuff.ā€ They were happy with my answer and I didnā€™t have to say anything else and it wasnā€™t a rude response.

January 15, 2023

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