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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Debating If I Should Go Try To Get Attention

A myHSteam Member asked a question 💭
Snow Hill, NC

Have had a couple of lesions up here lately. Very painful wether I go to sit down or stand up. Have had areas drained in the past. I am scared about being hospitalized again and having to miss work. Just looking for some advice.

May 24
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A myHSteam Member

Your health is and should always be your 1st priority.

May 25
A myHSteam Member

It sounds like you might be feeling uncertain about seeking attention for your hidradenitis suppurativa (HS). It's important to prioritize your well-being. If you're experiencing a flare-up or any discomfort, it might be beneficial to seek medical attention or support. Remember, taking care of yourself is crucial. If you read more

It sounds like you might be feeling uncertain about seeking attention for your hidradenitis suppurativa (HS). It's important to prioritize your well-being. If you're experiencing a flare-up or any discomfort, it might be beneficial to seek medical attention or support. Remember, taking care of yourself is crucial. If you need to talk to someone or get advice, connecting with others who understand your condition can also be helpful.

 This AI-generated response comes from myHSteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

6 Ways To Try Positive Affirmations for Self-Esteem With HS | myHSteam
5 Ways To Get Involved With HS Awareness | myHSteam
May 24
A myHSteam Member

Hi, I’ve had HS for about 25 years. I have tried everything under the sun to help lessen my flair ups. I mainly have flair ups in my groin area which can make it very difficult and painful to walk.

I am happy to report I have not had a flair up in 15 months. This is what I am doing to keep the flair ups away.

1. I had certain bumps that would constantly come back, drain, never completely heal and then return again. I started applying heat to these areas (I had to do one at a time because of the soreness). I’m sure you can use almost any safe heat source but I chose to use the “hot hands” product. I could wear it under my clothes, the heat lasted for many hours and it did not become too hot. I continued to use heat until the infection was all out and the drainage was blood only. I would then disinfect the area and apply a band aid temporarily.

2. Since my flare ups are mainly in my groin area, I had to make a decision to stop wearing underwear. It created constant friction in the area and would almost always irritate my skin.

3. I started taking luke warm baths daily vs showers. This was a big adjustment for me because I loved my showers. Once I started with my baths, I could almost immediately tell a difference in my skin.

I honestly believe making these 3 changes is the reason I have not had a flare up in 15 months. I pray this information will help others. 🙏🏻

Much love XO ❤️

May 27

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