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Not A Questions Just A Statement

A myHSteam Member asked a question πŸ’­
Dallas, TX

It's been a long day and I just want to say if you're on my team it's because I ve read your story top to bottom and this is why I added you to my team and I take time. In what I post thank you all for all the love and support y'all may not know it maybe we are all for here for a reason and true I don't know what that may be but I love you all and from Eddie here in Texas thank you for everything (also I welcome any newcomers to join my team but read my story and see if we agree but we are… read more

February 9, 2023
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A myHSteam Member

Bonbon, I am trying very hard to beat h.s. My husband, who still works, has had 3 surgeries on his back and has chronic back pain. Two of my best friends have diabetes and I don't so far. My own half brother is having housing problems. Of course, I know people who have problems worse than mine. However, I have been really on the path to trying to get some resolve on the h.s. only after it spread to my breasts in 2020. I have had h.s. since 1998 and worked and was married to the same man I still am married to. Believe me, I am doing everything I know to fight it. I do need to do more research and try harder. I am grateful for the things I do have and grateful that I don't have many disabilities. It gets a lot more up close and personal when I have had breast surgery in 2020 and 2021. Been on Humira most of 2022. So, if I sound like I hate h.s, I do. But more than that, I want to beat the h.s. devil πŸ‘Ώ to death.

February 11, 2023
A myHSteam Member

Bonbon, Thanks my friend.

August 10
A myHSteam Member

Bonbon, Thank you so much!!. Yes, and least he is doing the blood work. But, it is scary. Too many side effects. I am pretty sure I won't be able to continue it, as now I get well and a couple hours after I take it I cannot eat and if I do then throw it up. Have a great afternoon!!🌈

February 14, 2023
A myHSteam Member

Wow, you've had quite a time Trina, so good to hear you have some improvement! I hope life keeps getting better for you!! Hugs

August 8
A myHSteam Member

Bonbon, Finally got rid of the breast abscesses that were awful. Went to Houston and they diagnosed me with Zuska's disease which is benign, but after four years she finally gave me a diagnosis and did surgery on both. Yes! My hidradenitis suppurtivia is under control except for under the breast right now. The psoriasis which was a side effect of H biologic is doing better with VTAMA cream. I am off all biologics. I tried Skyrizi for 3 doses and the surgeon wanted me to get off it to build my immune system. I am doing better. Just dealing with πŸ‘‚πŸ‘‚ ear infection in both ears, but have the medicine for it from ENT. Pic of me back in April when I had surgery on both breast at Women's hospital in Houston. Keep up the fight, as we all do. No never giving up.

August 7

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