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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Any Of Y'all Have Lupus And HS

A myHSteam Member asked a question πŸ’­
Concord, NC

I was diagnosed with lupus last year I started having red blotchy blood looking welps all over the lower part of my legs every time I would stand for long periods of time they would also get so dark it look like they were bruising after a time of getting these over and over and over I started getting a what they call butterfly rash on my face I was later diagnosed with lupus I was also told that people that have HS have a tendency to get lupus as well because they are both autoimmune disease… read more

February 13, 2023
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A myHSteam Member

Yup! SLE/discoid lupus and HS! πŸ™„ What a freaking fantastic combination huh?! There are meds for the spots. Beware of the side effects of plaquenil. And I found some products at Sephora that help with the butterfly rash. Hang on love! This is a rough ride trying to balance lupus and HS. πŸ˜‰ I'll answer whatever questions you have to the best of my ability! πŸ€—

February 13, 2023
A myHSteam Member

Kelly a the ambassador does have lupus I think πŸ€” and hs πŸ‘

February 13, 2023
A myHSteam Member

I always thought I had lupus as a child dealing with this disease but I wasn’t diagnosed with HS till adulthood. There are a lot of people on here that have other autoimmune co-morbid illnesses, so I definitely feel they are common.

February 6
A myHSteam Member

I was told that I would never have children. I have two. They are the joy of my life. I miscarried several. Lost my son's twin. But, here's the thing, I didn't do it! They were simply not meant to be. Both my kids are autistic. My daughter is the oldest and is high functioning, but my son is like a toddler and he is 25 years old. If all my babies had survived, I wouldn't be able to take care of them. I've had to accept that it just was not meant to be, not my fault, and believe that one day I will meet the ones I lost! πŸ˜‰ Fate, God, I don't know. But I have to believe that there is something better, a better place, than how we're living when we pass. πŸ€—

February 15, 2023
A myHSteam Member

Thank you Kelly ❀️

February 14, 2023

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