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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Humira Or Not? If There Is Anyone On Here Who Took Humira And Got Off Of It And Did H.s. Get A Lot Worse?

A myHSteam Member asked a question 💭
Groves, TX

My blood work was normal the doc said. But, it was getting where when I took the shot it made me sick. I had went through two staphylococcus infections. I took myself off. Hope it will not cause a trainwreck, Lol He put me on monocycline or monocin. I having got it yet, so not sure of name.

February 24, 2023
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A myHSteam Member

Bonbon, Yep sure am, but try to take it a day at a time. Thanks for the support sweetie. 🤗 hugs back

May 8, 2023
A myHSteam Member

Sandra, I have Clindamycin ointment so the pills may be called monocycline. Will update when I get them, but have been feeling better after quitting Humira.

February 26, 2023
A myHSteam Member

Michelle and Bonbon, Just seeing what happened or not to others. No, every BODY is different and h.s. is like an alien/devil 👿 of a disease. I know I have felt a lot better being off of it since February 10th.

February 24, 2023
A myHSteam Member

Humira is not a cure! Like with everything that Dr's will prescribe.....what works on some HS people will not work on others, or will work for a while then not work. HS has a mind of it's own!

February 24, 2023
A myHSteam Member

I was on Humira for a few months, but then it was causing some eczema so I stopped because I was going overseas and I got nervous lol. However, I was worse after my trip so per the doctor's recommendation, I went back on it. The eczema is much better. As long as I keep up on my cream, it pretty much stays at bay. However, since September, I have been battling with flairs. I would occasionally get them here and there. But it seems like every time I turn around I am battling another. Not sure why. So, I was on Humira for a few months, went off and went back on and I really haven't seen a tremendous change either way.

February 24, 2023

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