On my back at the middle of my shoulders I get deep knots that looks like a black head.
Tailbone pain lower back pain every day of my life
Deep blackhead in my butt crack.
Sometimes I lift my right left and I feel a “muscle pull” IN my butt and to that hip….
Brushing my hair sometimes makes my neck breakout in hives and feel oily and itch/burn.

I use to get boils that hurt terribly between in my groin and arm pits (older brother has them BAD) when I was younger but I am much smaller now, I have dents and scars. Hips lock up and feel like I have to work them or they are stiff and don’t want to move. I keep getting what looks like DEEP black heads on my shoulders and in predictable shoulder paint one only the side with the spots. Like anybody else I tried to extract this “blackhead” with a pair of tweezers and it just got bigger and bigger, hot water is the only thing that helps it. Sometimes my arm pits sweat and burn, and get knots in them. It’s like all these things that use to happen when I was younger that my mom said “you can thank me and grandma for that” is starting to happen again at full force.
I also work in a kitchen at a nursing home I wear a hairnet everyday, (14 yrs) i have always had a lump:knot behind my ear that sometimes hurt bad to where I got head aches. Sometimes it felt like it wasn’t even there.
I thought I was getting ingrown hairs… but its much more intense then that it smell these terrible smells in waves through out the day ( sweaty head/old blood ) I get drainage. Feel exhausted after I get “relief “

Now I don’t even wear earrings because they swell/drain. Beside my eye closer to my hair line I keep getting a knot that started out looking like a blackhead. It just big and drains. Sometimes looks like an open wounds. I get told “stop picking at it” when I’m not doing anything but hot compress for relief. They seem to always turn into multiple spots when I am getting relief like they empty and leave a trail? If that makes any sense lol.
I’m emotional, have anxiety,depression, anger issues. That come in waves I don’t have any control over.
But it’s not always because I’m worried about what people think my face looks like. It sure doesn’t help though.

I look like I have a mustache. Like my hair gets so dark in that area.
I have stretch marks all in my inner thighs at my arm pit skin folds, behind the knee, breast now getting them on my belly and one real thick deep looking one on my right hip bone area followed by one of them deep looking black heads that looked like a pimple to start. Now it just looks like an old healed up scab. But it gets big and inflamed whenever it wants i never know….
My sinuses are so unpredictable
I can bend over come up feel a “pop/click” and just know my nose is going to run and burn for a day or two.
This probably doesn’t have anything to do with it I’m not sure but I have a knot on my pinky finger that sometimes looks open other times looks like skin colored but every morning that finger feel jammed and I have to work it or it is sore and can’t move.

I’m sorry you’re dealing with this. When you say bad acne are you referring to cysts that cause tremendous pain, swelling, and drain pus? If so, that could be HS. HS involves flares, so it comes and goes, but it typically doesn’t come monthly like clockwork. You can be “in remission” for months or years without a flare. Alternatively, you could have a mild stage of HS. Doctors are typically reluctant to diagnose for 2 reasons: 1. they aren’t familiar enough. 2. It’s an autoinflammatory and chronic lifelong disease. I wish you the best of luck at your appointment.

Sorry

Wow