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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

My Doctor Just Diagnosed My HS Lesion As Herpes Simplex Virus 1. Has This Happened To Anyone Else?

A myHSteam Member asked a question 💭
Berthoud, CO

Does herpes pop like an abscess? I told my doc that i have had sores like this for years and if this is herpes then i have been lied to for years. I am just so confused and don’t understand why a doctor would this HS is herpes?

January 25
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A myHSteam Member

Most of the time HS is misdiagnosed some doctors have not studied it. Was it a dermatologist that diagnosed you? Definitely get a second opinion i went to multiple doctors and dermatologist when mine first started and i was misdiagnosed a couple times before i found a more experienced dermatologist and found out it was HS. @A myHSteam Member

January 25 (edited)
A myHSteam Member

Get a second opinion. Also, do you get abscess in different locations or just in one particular place?

January 25
A myHSteam Member

Yes, it has happened to others. Hidradenitis suppurativa (HS) can sometimes be misdiagnosed as herpes. One member of myHSteam shared their frustration about being misdiagnosed with herpes despite not having had sex in over a year. HS bumps are different from herpes sores; they take longer to heal, often produce scarring read more

Yes, it has happened to others. Hidradenitis suppurativa (HS) can sometimes be misdiagnosed as herpes. One member of myHSteam shared their frustration about being misdiagnosed with herpes despite not having had sex in over a year. HS bumps are different from herpes sores; they take longer to heal, often produce scarring, and aren't contagious. If you think you've been misdiagnosed, it's important to talk to another doctor for a second opinion.

 This AI-generated response comes from myHSteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

What Can Be Mistaken for Genital Herpes? | myHSteam
Hidradenitis Suppurativa vs. Herpes: What’s the Difference? | myHSteam
July 23
A myHSteam Member

Would definitely get a second opinion, the 2 are totally different.

January 28
A myHSteam Member

I would certainly get a second opinion, HS goes undiagnosed and misdiagnosed often.

January 25

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