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How Much Study Has Been Completed For HS? What Percentage Of People Are Affected Based On Race?

A myHSteam Member asked a question 💭
Tulsa, OK
January 27
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A myHSteam Member

That’s it. All these things we are trying are not scientifically proven. But they are helping. There are studies going on to find a cure. But nothing specific has come of it. All these TNF Blockers we are taking aren’t specific to HS they’re specific to other conditions. I’m at the point where I will try anything.

January 27
A myHSteam Member

From my understanding, people of African descent and Europeans are at higher risk. Women more than men.

January 27
A myHSteam Member

I don't know the exact answer, any one can get HS but for some reason African American people have a higher rate than others. I've been reading trying to figure why we are more prone to HS.

January 27
A myHSteam Member

Study and Research on HS
- Prevalence and Research Gaps: The prevalence of HS is not well understood within the U.S. or globally. Research on HS in people of color is even more scarce. There is a need for more research to better inform the diagnosis and treatment of HS, especially in people of color.

Percentage of Show Full Answer

Study and Research on HS:
- Prevalence and Research Gaps: The prevalence of HS is not well understood within the U.S. or globally. Research on HS in people of color is even more scarce. There is a need for more research to better inform the diagnosis and treatment of HS, especially in people of color.

Percentage of People Affected by HS Based on Race:
- Non-Hispanic Black Adults: Approximately 50%
- Hispanic Adults: Approximately 46%
- Non-Hispanic White Adults: Approximately 41%
- Non-Hispanic Asian Adults: Approximately 16%

Additional Insights:
- Higher Prevalence in African Americans and Hispanic People: African American and Hispanic people in the U.S. are more likely to develop HS than white people.
- Disparities in Clinical Trials: Many clinical trials for HS treatments, such as those for the biologic adalimumab (Humira), have low representation of African American participants, with some trials including less than 20% African American participants.

Mental Health Impact:
- Depression and Anxiety: Nearly 5% of people with HS have anxiety, and 17% have depression. Hispanic and African American people are more likely to experience major depression than white people.

Need for More Research:
- Lack of Representation: There is a significant need for more research involving people of color to better understand and treat HS effectively.

This information highlights the importance of increasing research efforts and representation in clinical studies to improve the understanding and treatment of HS, particularly among people of color.

July 25

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