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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Much Pain Do You Have? I Can't Handle The Shooting Pain And When It Happens, I Can't Move Out Of The Bed. Is It Just Me? I Have Multiple

A myHSteam Member asked a question 💭
posted July 7
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A myHSteam Member

You are not alone. It zucks

posted July 11
A myHSteam Member

Nope.

posted July 7
A myHSteam Member

You're not alone in experiencing severe pain from hidradenitis suppurativa (HS). Many people with HS describe their pain as hot, burning, sharp, and throbbing. This pain can be so intense that it affects daily activities and sleep. Here are some shared experiences and tips from others with HS:

- Pain Descriptions: Membe... read more

You're not alone in experiencing severe pain from hidradenitis suppurativa (HS). Many people with HS describe their pain as hot, burning, sharp, and throbbing. This pain can be so intense that it affects daily activities and sleep. Here are some shared experiences and tips from others with HS:

- Pain Descriptions: Members have described their pain as "constant stinging," "feels like needles poking," and "sharp pains."
- Sleep Issues: Pain often leads to insomnia, with some members needing sleep and pain medications to rest.
- Movement Limitations: Pain can make it difficult to move, lift arms, or even get out of bed.

If your pain is unmanageable, it's important to contact your dermatologist or healthcare provider for personalized advice and treatment options.

 This AI-generated response comes from myHSteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Sleep and Hidradenitis Suppurativa: 6 Ways To Manage Nighttime Pain and Get Better Rest | myHSteam
Hidradenitis Suppurativa (HS) Pain: Causes and Treatments | myHSteam
posted July 7

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