Connect with others who understand.

Sign up Log in
Resources
About myHSteam
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Was Diagnosed With Mast Cell Activation Syndrome (MCAS) Today. Is This Something That Other People With HS Commonly Have As Well?

A myHSteam Member asked a question 💭
Portland, OR

I also finally have referral to a specialist surgeon who deals with HS tell me options for treatment and a Rheumatologist to see if I have RA. I’m exhausted, but this is the first time I feel like a doctor has me on a good plan for consults. I’m just daunted by this diagnosis.

October 30
View reactions
A myHSteam Member

I’m so sorry. Hang in there!

October 31
A myHSteam Member

@A myHSteam Member which doc diagnosed you? Also if u wouldn't mind what symptoms that lead to the mcas discovery? Also girl u are a warrior and ur current situation isn't ur final destination beautiful. You got this. Sorry im not of more help 🌺💐

November 4
A myHSteam Member

Thank you both! I’m so grateful for my gynecologist. She’s the most helpful doctor I’ve ever had for anything. I hope things improve from here and I can help folks in my area with referrals.

November 3
A myHSteam Member

Hi Amy, I'm glad you found a doctor to give you a referral. Hopefully things get a lot better. Take care, be safe and have a wonderful weekend 😄

October 31

Related content

View All

Should I See A Family Practitioner Or Get An Appointment With A Dermatologist?

A myHSteam Member asked a question 💭

How Many Of You Have Mast Cell Issues?

A myHSteam Member asked a question 💭
Castro Valley, CA

Hormonal Treatment

A myHSteam Member asked a question 💭
Rex, GA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in