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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Advice Would You Give To Someone Newly Diagnosed With HS?

By A myHSteam Member 30 answers

Which HS Symptom Surprised You The Most?

By A myHSteam Member 50 answers

What Lessons From Your HS Experience Are You Applying In 2024?

By A myHSteam Member 32 answers

Do You Follow A Specific Diet To Help With HS?

By A myHSteam Member 33 answers
2270 questions

I Have Been On Clindamycin And Rifampicinfor Over A Week Now And Had A Constant Headache. It Never Goes, Sometimes It's Bad. Is This Normal

A myHSteam Member asked a question 💭
Crawley, UK
A myHSteam Member

Myra09 I'm so sorry

March 1

How Do You Find A Dermatologist For This? Trial And Error? Recommendations On Here In My Area Are Not Up To Date.

A myHSteam Member asked a question 💭
Bridgewater, NJ
A myHSteam Member

I live in a rural area in northern Utah, and while there are multiple options, there are not dozens. I’m hoping I can find one that is compassionate and knowledgeable with HS but I’ve found a couple… read more

February 29

Has Anyone Use Anything That Actually WORKS???

A myHSteam Member asked a question 💭
Charleston, SC
A myHSteam Member

Sound like a Cortisone shot. I've had those a few times. They last for about a week.

March 2

Remicade

A myHSteam Member asked a question 💭
Philadelphia Area, PA

Has anyone had to take spironolactone with remicade I'm waiting for my insurance to approve a higher dosage of remicade because even though there some improvement I'm still flaring I heard methotrexate can cause some serious side effects just wanted to hear everyone thoughts

A myHSteam Member

Wow thanks Shane I think tht what my doctor is going to do next if this remicade is not working I only had three doses so far but I thought there would be more significant changes

February 28

For Those Who Have Had To Go To The ER Because Of The Pain Being Beyond Bearable What Do You Say To Make Them Understand?

A myHSteam Member asked a question 💭
Columbia Station, OH
A myHSteam Member

Thank you so much I will try that. I'm a control freak so I don't like taking anything that messes with my mind and granted yes the hardcore pain meds they give you at the ER is fine but to go home… read more

February 29

I Am Recently Diagnosed And Have No Idea What To Expect. Does Everyone See A Dermatologist For This?

A myHSteam Member asked a question 💭
Gatesville, TX
A myHSteam Member

@A myHSteam Member not really I showed her all my affected areas luckily I am in remission at the moment

March 2

Has Anyone Had Wide Excision Surgery Of The Lower Back? How Was Recovery And Was It Worth It?

A myHSteam Member asked a question 💭
Raleigh, NC
A myHSteam Member

I had a pilonidle cyst removal when I was 25. Before that, I suffered 6 years with incision after incision in the same spot from flare ups. The recovery was brutal!! I was without assistance from… read more

March 7

Has Anyone Been Intimate With A New Partner After Being Diagnosed? If So, How Did You Approach The Topic Of Oral Sex?

A myHSteam Member asked a question 💭
Oregon City, OR

I'm between stages 2 and 3 in my groin, side boob and armpits, thighs. I also have a lot of scar tissue in and around my labia but only on one side and I'm terrified and already embarrassed. He knows all about the condition and doesn't care...but I still feel like reading and photos are different than being in an intimate situation with me.

A myHSteam Member

So touching what you said I have to remind myself that there is more to me than Hs but this disease has effected every part of my life I just shut the world Away

March 28

Hi There, New To The Site Today! Just Been Diagnosed And Advised To Use An Antibacterial Wash. Any Suggestions Would Be Appreciated Please

A myHSteam Member asked a question 💭
Ipswich, UK
A myHSteam Member

Read Traci6

March 7

How Much Zinc Is Safe To Take?

A myHSteam Member asked a question 💭
Columbus, OH
A myHSteam Member

Over the counter vitamins usually have dosage recommended on the container, but if that’s not enough info for what you need a good pharmacist should be able to answer your question free of charge.

February 27
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