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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With HS?

By A myHSteam Member 16 answers

What's A Common Misconception About HS?

By A myHSteam Member 42 answers

Do You Follow A Specific Diet To Help With HS?

By A myHSteam Member 34 answers

Has Anyone Ever Taken The New HS Drug Cosentyx?

By A myHSteam Member 28 answers
2272 questions

Had A Pretty Big Deroofing Surgery This Morning And The Post Op Pain Is Worse Than Anticipated. Does Anyone Else Have Experience With This?

A myHSteam Member asked a question 💭
Pennsylvania Furnace, PA
A myHSteam Member

Hi Brooke, I had surgery on the 8th, no pain as I took painkillers constantly. However my wound opened up after a few days, pain started, got re-stitched up on the 14th. Then again my wound opened… read more

February 20

Has Anyone Developed Ha In Their 60’s? I’m 66 Just, And Have Had These Symptoms For 5 Months. Never Before.

A myHSteam Member asked a question 💭
Windsor, ON canada
A myHSteam Member

I've seen where people have recommended and sworn by organic cold compressed castor oil. Others have recommended manuka honey.

February 23

So What Are Somethings That You Have Tried To Keep Your Clothes Clean And/or Mask The Smell?

A myHSteam Member asked a question 💭
Clarksville, TN

Bandaids don't work for me cause the area is so big and I break out from the sticky part, and I use hibicleanse in the shower to clean. I have used boil ease for pain and to bring them to a head or ichtamol, dark tarry stuff.

A myHSteam Member

TamiEakesFranklin, I use paper tape or silicone tape.

March 26

Does Anyone Think That Deodorant Can Give Us HS. It Clogs Our Pours Under Armpits

A myHSteam Member asked a question 💭
Los Angeles, CA
A myHSteam Member

That is True,I Got Some in my abdomen n my waist big cysts too,what I did do was wear one of those Shapewears days in a row and I Broke Out n Got Cysts around my waist and abdomen .I Use Deodorant n I… read more

February 12 (edited)

Does Anyone Here Have Rosacea? I Have It On My Cheeks, It's Not Bad Though. Are There Any Creams Or Anything To Help The Redness? Is Rosacea

A myHSteam Member asked a question 💭
Woodstock, IL

linked with HS somehow? TIA

A myHSteam Member

Yes, I had it long before I developed HS. Not sure if they are related. I use Clinique Redness Solutions moisturizer, also rx for Metrogel. Some days are worse than others though. A good foundation… read more

February 13

Does Anyone Else Have Constant Drainage From Tunnels Even Without A Flare Or Cyst?

A myHSteam Member asked a question 💭
Midwest, WY

I'll jump right in, I first noticed the smell behind my ears around 3rd grade. I've tried everything. If I don't 'pop' these at least every 2 days, they pop themselves. (They can pop up anywhere back there, they're not always in the same spots) They don't hurt, not swollen or red or anything until after I squeeze out as much as I can. I also happen to have Hyperhydrosis along with a few other debilitating conditions. I don't know what to do. I finally got a referral for a new derm back in Nov &amp… read more

A myHSteam Member

What made me finally see a derm (also had hs since I was early teen) I had a little bump like that under my chin/ jawline, that I used to squeeze. One day, I squeezed too hard , played with it too… read more

February 13

I Have Hidradenitis Suppurativa Questions I Am Having Surgery Very. I Just Wounder After Surgery. Has Any Had Flare Ups After Care.

A myHSteam Member asked a question 💭
Trowbridge, UK

I had over 300. Over my bodies. I still flare in between belly and side groin and top bottom legs.

A myHSteam Member

Same it does lessen problems for awhile but by no means is it a cure

February 11

Pilonidal Sinus

A myHSteam Member asked a question 💭
London, UK

Has anyone had a pilonidal sinus
I had surgery to remove one six years ago, and it was successful. I know these are notorious for returning, and I think it has come back. However, the lump is now on the other side of my butt, not the place I had the original surgery so I’m not sure if it’s the same thing.

I find going to the GP quite frustrating (UK) as they tend to view it as a normal cyst. They prescribe antibiotics but this usually coincides with the lump draining, so I’m never sure if… read more

A myHSteam Member

I too had a skin graf and later they appeared on my other cheek. It's a beast that has a mind of its own. I wish they would hurry with a cure. Cosentix has just been approved by my Health Care, so I… read more

February 10

I Have Scar And Lingering Flare Ups. The Lingering Flare-ups Don't Hurt, But They Stay Almost The Same Size With No Pain.. Advice?

A myHSteam Member asked a question 💭
07416
A myHSteam Member

I also have scarring throughout the groin/buttocks area, with a few spots that linger, without pain, while occasionally producing a small amount of infection. I find this very annoying because I… read more

February 29

Anybody Have Experience With Consentyx ? My Dermatologist Recommended It

A myHSteam Member asked a question 💭
Boca Raton, FL
A myHSteam Member

How did humira work for you?

February 11
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