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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With HS?

By A myHSteam Member 16 answers

What Lessons From Your HS Experience Are You Applying In 2024?

By A myHSteam Member 32 answers

May Is Mental Health Awareness Month. Any Advice For Someone Newly Diagnosed With HS?

By A myHSteam Member 32 answers

How Does The Cold Affect Your HS?

By A myHSteam Member 34 answers
2272 questions

Can I Get A Injection To Help Me Feel Better..It’s Painful

A myHSteam Member asked a question 💭
Jamaica, IA
A myHSteam Member

Hey Jenni.......It's true, unfortunately doesn't work for all of us, but there are a few that have had the nerve to give up carbs.....it's hard at first. I was brought up to eat carbs at every… read more

February 11

How To Get Rid Of Bio Film ?

A myHSteam Member asked a question 💭
Boca Raton, FL

Does Vaping Affect HS. I’m Trying To Quit It’s So Hard. And Also What Are Things To Do To Avoid Flare Ups? I Go To See My Derm.the 21st

A myHSteam Member asked a question 💭
Terre Haute, IN
A myHSteam Member

I truly believe CBD and THC help with the inflammation. Which is why it’s prescribed for patients where it’s legal for arthritis and back pain and nerve pain. I also use THC to help with the pain and… read more

February 8

Best Advice For Open And Draining Flares.

A myHSteam Member asked a question 💭
Lake Charles, LA

Most people have an issue with getting flares to drain. My issue is they keep draining, fill up, and drain again. Or they are just open sores. Soaking makes me worse so that's a no.

A myHSteam Member

Sorry for my very delayed response.

A hydracolloid dressing is similar to a blister patch. I find that they don’t irritate my skin as much as normal bandaids.

March 3

How Do I Shave My Arm Pits With My Sores?

A myHSteam Member asked a question 💭
Albany, CA
A myHSteam Member

Yeah don't recommend shaving either I've not tried the laser I just clip with scissors

February 11

I Am Being Treated With Humira Which Doesn't Seem To Work N Experiencing Hair Loss Anyone Else ??

A myHSteam Member asked a question 💭
Manchester, NH
A myHSteam Member

I have tried everything 😭

February 9

Is It Common To Have Full Body Pain With Hs, Even When There's No Boils?

A myHSteam Member asked a question 💭
Hiddenite, NC

I'm new to hs and I'm the process of getting diagnosed. Several doctors and nurses said it's hs with certainty. I also have congested heart failure, eosinophilic asthma, type 2 diabetes which it's under control and mild.

A myHSteam Member

morning steve hope your feeling well today I always have really bad joint muscle pain especially running up to a flare up its an awful nagging pain that often lasts days sometimes weeks

February 15

What Kind Of Deodorants Are Safe To Use?

A myHSteam Member asked a question 💭
Salt Lake City, UT

I have hs in my armpits and I’ve been struggling to find something that’s gentle & doesn’t irritate.

A myHSteam Member

When choosing a deodorant for hidradenitis suppurativa (HS), consider the following:

- Aluminum-Free Options: Products like Native Deodorant, Kiss My Face, and Pretty Frank are recommended as they… read more

August 2

Instant Relief.

A myHSteam Member asked a question 💭
Atlanta, GA

I have been hearing about the Castor Oil, I got some.. this one specifically.. and it did give me instant relief. On open wounds, and inflammation, itself. Picture attached. Found on Amazon!

A myHSteam Member

For instant relief during an HS flare-up, consider the following tips from the knowledge base:

- Warm Compresses: Applying warm compresses can help reduce pain and inflammation
- Pain Relief… read more

August 2

Wondering If Anyone Has A Rash With Their HS?

A myHSteam Member asked a question 💭
Lancaster, PA

I recently had this weird rash act up on my legs and arms, I have been getting treated for it by a allergist but we're kinda stumped on what could be causing it seeing there hasn't been and environment changes or food changes. I was wondering if it could have something to do with HS and if anyone else might or might not get something like this? I have noticed it sometimes flares up going from the cold outside to the heat inside which makes me wonder about sweat glands and HS. I'm not looking for… read more

A myHSteam Member

This might not help, but I was put on Humira a few months ago for my HS and it caused drug-induced eczema/psoriasis. My rash is reddish brown (my skin is brown), smooth and shiny, and all over my… read more

August 2
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