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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’m Confused About What Mud Doctor Has Told Me

A myHSteam Member asked a question 💭
Ystalyfera, UK

Hi I’m from England and I asked my doctor is he could perscribe me hirdowear but this is a the text I got back, I’m not sure if he doesn’t understand what hirdowear is or if I’m confused, I can’t make sense of his message I find it confusing can any one help make sense of it?

July 18, 2023
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A myHSteam Member

Hidriawear is a compression garments you can wear that has holes in it for air and also to put the pads in for absorption it is expensive and the refill pads are too if your doctor can get insurance to pay for this try it if you Google it you can see what it is and how it works

July 30, 2023
A myHSteam Member

I understand but I wasent smoking or drink at the age of 11 when this all began, so I don’t believe smoking or drink have anything with hs may make it worse but dosent actually give you the condition. But when I talk I’m not the poshest of people I think I just give them a different vibe to what I am and they just don’t want to deal with me

July 19, 2023
A myHSteam Member

I have them in all three of those a places and my thighs and breasts, so I thought I fit the requirements

July 19, 2023
A myHSteam Member

In the 16 years I’ve had This, I’ve seen a dermatologist twice where my doctors really don’t know or have a clue about the condition he referred me to one march 2023 and still haven’t heard back

July 19, 2023
A myHSteam Member

It sounds like you might be feeling uncertain about your doctor's advice regarding hidradenitis suppurativa (HS). Here are some key points to consider when discussing HS with your doctor:

- Preparation: Write down all the points you’d like to discuss in advance. This helps ensure you cover everything important during your Show Full Answer

It sounds like you might be feeling uncertain about your doctor's advice regarding hidradenitis suppurativa (HS). Here are some key points to consider when discussing HS with your doctor:

- Preparation: Write down all the points you’d like to discuss in advance. This helps ensure you cover everything important during your visit.
- Mental and Emotional Impact: Share how HS has affected you mentally and emotionally, not just physically.
- Inflammation Understanding: Ask your doctor to help you understand the inflammation inside your body that may be contributing to HS.
- Empathy and Honesty: A good HS doctor should be empathetic and honest about the challenges and potential outcomes of the condition.
- Demand Better Treatments: Always advocate for better treatments and solutions.

If your doctor isn't providing clear or empathetic communication, it might be worth seeking a second opinion from a specialist who understands HS better.

July 12

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