Connect with others who understand.

Sign up Log in
Resources
About myHSteam
Powered By
Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Why Do Dr's Insist That You Get So Far Advanced Each Time Before They'll Treat It? Why Not Deal With It When It's Pea Sized?

A myHSteam Member asked a question 💭
Chico, CA
May 23
View reactions
A myHSteam Member

they dont typicily see small wounds as hasards so they mostly look for the narly stuff. luckily my surgen is being proactive with my treatment. i have had HS for almost 10 years now and this surgen is the only person who has wanted to help me and can and is willing to put in the work and effort.

I recomend to find a good set of doctors or find a good wound care place that has a surgen on staff. also you will always be your best advocate learn as much as you can about HS and how your blood protens can be effected and more.

May 24
A myHSteam Member

Hi, I’ve had HS for about 25 years. I have tried everything under the sun to help lessen my flair ups. I mainly have flair ups in my groin area which can make it very difficult and painful to walk.

I am happy to report I have not had a flair up in 15 months. This is what I am doing to keep the flair ups away.

1. I had certain bumps that would constantly come back, drain, never completely heal and then return again. I started applying heat to these areas (I had to do one at a time because of the soreness). I’m sure you can use almost any safe heat source but I chose to use the “hot hands” product. I could wear it under my clothes, the heat lasted for many hours and it did not become too hot. I continued to use heat until the infection was all out and the drainage was blood only. I would then disinfect the area and apply a band aid temporarily.

2. Since my flare ups are mainly in my groin area, I had to make a decision to stop wearing underwear. It created constant friction in the area and would almost always irritate my skin.

3. I started taking luke warm baths daily vs showers. This was a big adjustment for me because I loved my showers. Once I started with my baths, I could almost immediately tell a difference in my skin.

I honestly believe making these 3 changes is the reason I have not had a flare up in 15 months. I pray this information will help others. 🙏🏻

Much love XO ❤️

May 27
A myHSteam Member

Doctors often recommend early treatment for hidradenitis suppurativa (HS) to manage the condition effectively. If you feel your doctor is waiting too long to treat your HS, consider these points:

- Seek a Specialist: HS is a complex condition requiring specialized knowledge. If your current doctor isn't addressing your read more

Doctors often recommend early treatment for hidradenitis suppurativa (HS) to manage the condition effectively. If you feel your doctor is waiting too long to treat your HS, consider these points:

- Seek a Specialist: HS is a complex condition requiring specialized knowledge. If your current doctor isn't addressing your concerns promptly, ask for a referral to a board-certified dermatologist specializing in complex medical dermatology.
- Early Diagnosis: Early treatment can lead to better outcomes. If you experience worsening pain, spreading lesions, or frequent flare-ups, see a dermatologist immediately.
- Communication: Clearly communicate the impact of HS on your daily life, including physical, mental, and emotional aspects, to ensure your doctor understands the urgency.

If you feel your concerns are not being addressed, it might be beneficial to seek a second opinion from a specialist who understands HS better.

 This AI-generated response comes from myHSteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Finding a Doctor Who Understands Hidradenitis Suppurativa (HS) | myHSteam
Hidradenitis Suppurativa Popping — Caring for Cysts and More | myHSteam
May 23

Related content

View All

Canadian Friends With HS - Anyone Taking The Long Term Disability Route? Trouble With Employers Regarding This Illness/disease?

A myHSteam Member asked a question 💭
Canada, CANADA

$10K Cure Available?

A myHSteam Member asked a question 💭
Canada, CANADA

Are You A Monster Or Something?

A myHSteam Member asked a question 💭
Dallas, TX
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in