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Rheumatologist
So, I finally saw a rheumatologist Friday, still need to get updated blood work before anything is final, but she is saying that HS can cause my body to go into flares and create fevers, attack my joints , pretty much everything that RA and Lupus can create. I sorta think that she is just using HS as the main source of everything, and writing off the rest. I was looking forward to this meeting as maybe finally getting some answers, but I feel like I've been dismissed. I was misdiagnosed with… read more
Yes. I have derm follow up apt next month to see what the next move is.
Well I'm sorry that cosentyx hasn't helped you. Are you looking for a different route?
Hi, thought I would chime in, I have RA, PSA, Sjogrens & HS. The dermatologist started me on Cosentyx in February and it hasn't helped at all with the HS. Best of luck to you finding some relief, this disease is terrible!!
I absolutely feel like I am being dismissed, as soon as she found out I had HS, she wiped her hands of me and said that the cause of everything. I was seriously irritated when I listed my issues, and she smirked saying if I was of Mediterranean or middle eastern decent , she would of classified me with FMF, but since I'm Caucasian, there's nothing wrong with me.
I read that costenx has fewer issues, and is relatively safer. But it will depend on your body if or how well it works. Right now I'm on spironolactone, it's definitely helped lessen the flares.
My dermatologist wants to try consentx next! I think I will give it a try! So do you feel like your being dismissed and do have lupus ?
Has Anyone Tried COSENTYX
I Was Diagnosed With Mast Cell Activation Syndrome (MCAS) Today. Is This Something That Other People With HS Commonly Have As Well?
Any Suggestions For New Or Uncommon Treatments??
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