Hi Shane! The thing with scientific research into anything is it is extremely slow going, as it takes exploration, discovery, and testing and retesting of that discovery before it can be vetted to be shared as a working theory or fact. Even more is put into the testing of new drugs. HS has gotten more attention in recent years prompting more studying, but i personally feel like research that will further treatments in the leaps and bounds all of us deperately wish it would move is probably still a bit off. However, I have seen these two articles published in 2023 and 2024 where researchers think they have narrowed down the genome location of how this condition is passed down, which opens up possibilities of exploring either being able to pinpoint prepubecent children that have a high chance of developing it in order to intervene with treatment and management early on, or working on ways to alter the gene to eliminate it. Also, in 2024, studies officially shifted the percentage of young adults with HS from 1% to 4%, which doesn't sound like much, but the more people identified and diagnosed, the more pressure it put on research to continue to look into ways to manage, treat, and possibly cure this in the future. I included the links to both if you are interested!

https://news.unchealthcare.org/2023/07/research...

https://www.news-medical.net/news/20240116/Stud...

Researchers Discover Genetic Locations for Increased Risk of Hidradenitis Suppurativa | Newsroom

https://news.unchealthcare.org/2023/07/researchers-discover-genetic-locations-for-increased-risk-of-hidradenitis-suppurativa/

Study uncovers higher prevalence of hidradenitis suppurativa in young Finns

https://www.news-medical.net/news/20240116/Study-uncovers-higher-prevalence-of-hidradenitis-suppurativa-in-young-Finns.aspx

Shane I don't know how you find out if research is being done on HS???? I constantly feel like none is being done anywhere.....you see new people on here and same story as 30 yrs ago......Dr's don't know what you have, don't know how to treat it, tell you you need better hygiene, stop smoking.... etc. I have told my Dr I am willing to do any clinical trials or tests years ago, but never heard a word. I think when they do research, it will be hard to find a cure because different things work differently on all of us, so hard to find a common cure??? We can hope though!

A lot of great information! Thank you! I’ll definitely be reading your sources.