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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Go About Telling Your Partner You Have HS? I Want To Be Intimate With Her But I’m Very Very Nervous & Embarrassed. :(

A myHSteam Member asked a question 💭
Salt Lake City, UT
July 20
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A myHSteam Member

I have been with my husband for 4 years and i told him about it in very simple terms and allowed him to ask questions and made sure to stress that it's not an STD or anything like that but and autoimmune disorder. then when i was comfortable and he was comfortable i showed him everything that 2as going on. taking the first step and talking to your partner is the firsr hurtle and the next is showing and helping them understand. then finding the things you can do to allow you and your partner to be comfortable with intimacy.

July 22
A myHSteam Member

Communicating with your partner about having hidradenitis suppurativa (HS) can be challenging, but it's important for your relationship and intimacy. Here are some tips from the knowledge base:

- Ease Into the Conversation: Start with a brief explanation of HS and gauge their response before sharing more details. You can read more

Communicating with your partner about having hidradenitis suppurativa (HS) can be challenging, but it's important for your relationship and intimacy. Here are some tips from the knowledge base:

- Ease Into the Conversation: Start with a brief explanation of HS and gauge their response before sharing more details. You can give them a heads-up about what you need, like saying, "I just need you to listen and don't ask questions."

- Explain What You Feel: Share how HS affects you, especially during flare-ups. Let your partner know about the pain and discomfort you experience, rather than focusing on what they might see or smell.

- Open Dialogue: Be honest and open about your condition. You might say, "This is what it is, this is what it does, I can't control it."

- Seek Professional Help: If you're unsure how to start, consider consulting a dermatologist, mental health provider, couples counselor, or sex therapist for guidance.

- Focus on Self-Relationship: Work on your relationship with yourself first. Think about what kind of touch or textures make you feel comfortable and excited.

Remember, it's normal to feel nervous, but open communication can help you and your partner navigate intimacy together.

 This AI-generated response comes from myHSteam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Intimacy and HS: Communicating With Partners | myHSteam
Sex and HS: myHSteam Members Share Challenges and Fears | myHSteam
July 20

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