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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which HS Symptom Surprised You The Most?

By A myHSteam Member 50 answers

What Are Your Go-to Remedies For HS Flare-ups? 🔥🧴

By A myHSteam Member 22 answers

How Does The Cold Affect Your HS?

By A myHSteam Member 34 answers

Could You Share Any Dietary Changes And Tips That Have Helped With HS?

By A myHSteam Member 33 answers
2270 questions

Has Anyone Had Success Controlling Their HS With Dietary Changes Alone?

A myHSteam Member asked a question 💭
Barrie, ON

I'm curious if anyone has had success controlling their HS with diet changes alone. What did you do? I've just finished a 2 week round of doxycycline with zero improvement, in fact it seemed to get worse. Ive had the same sore since Nov 2022. I was recently diagnosed and prescribed doxy at a walk in clinic, and my first dermatologist appointment is next week so I'll find out what my options are then I guess. My mind is going down a rabbit hole thinking I'm going to be on hard-core antibiotics… read more

A myHSteam Member

nope

April 20

Has Anyone Ever Got Their Scars Covered By Tattoos? This Is Affecting My Mental Health Greatly.

A myHSteam Member asked a question 💭
Ukiah, CA
A myHSteam Member

No I haven't and I can relate to the scars affecting mental health and confidence. I have serious issues with my underarms. I've just opted for using tumeric soap daily in the attempt to lessen the… read more

February 23 (edited)

Has Anyone Looked Into Or Used The Brand Lume For All Over Body Deodorant? It’s Supposed To Be All Natural And Such?

A myHSteam Member asked a question 💭
Roseburg, OR
A myHSteam Member

Yes I tried, and it has been effective. And yet, I haven’t made it routine, or rushed to reorder. I prefer the cream over the stupid stick.

March 7

Keeping Something For Pain In My System.

A myHSteam Member asked a question 💭
Lake Charles, LA

I have finally found some cbd gummies that I can have (I can't have corn) and other things to help with my pain. My issue is when I go to sleep, what am I supposed to do? In the daytime, I take something every 1-2 hours to keep something in my system. I've been setting alarms to wake up in the middle of the night for my pain but it results in me being restless. I haven't been able to get a good night's sleep in at least a month.

A myHSteam Member

I’m doing both THC and CBD and I’m right there with yall I need something for nighttime pain was given a sleeping pill think that made my HS worse

February 28

Is It Normal To Get A Boil Like Right On My Vaginal External Area?

A myHSteam Member asked a question 💭
Rochester, NY
A myHSteam Member

That’s the only place I ever get them and they are unbearable, was misdiagnosed till finally a year ago I was told I have stage 3 HS . Been on antibiotics had a few weeks no pain but they back again… read more

February 28

Does Smoking Cigarettes And Drinking Alcohol Make Hs Worse?

A myHSteam Member asked a question 💭
Albuquerque, NM
A myHSteam Member

I quit smoking a few times for more than two years at a time. Nothing changed with my HS. I go for weeks without drinking a single drink and no change, at all. I started vaping and it got worse so now… read more

March 1

Does Anyone Get Worsening Nerve Pain With Bad Flares? I Also Have Ankylosing Spondylitis And Idiopathic Progressive Polyneuropathy.

A myHSteam Member asked a question 💭
Oregon City, OR

I Work In Customer Service And I’m Always Close To People The Smell From My Drainage Is Making Me Nervous. What Do You Use?

A myHSteam Member asked a question 💭
Roseburg, OR
A myHSteam Member

I wash with Hibiclens (it will stain your tub) and used to use coconut oil for deodorant. I also use Hidrawear garments and dressings for flares.

February 24

During A Flare Up Is There Anything That Seems To Sooth Some Of The Pain? Any Lotion Or Cream?

A myHSteam Member asked a question 💭
Oklahoma City, OK

I have big bumps under my arms. They have hard knots underneath the skin. Maybe tunnels?

A myHSteam Member

Potato poultice. I’ve suffered for years. Recently started using potato poultice for break outs. Draws infection out and helps inflammation and soreness x

February 23

I Went To My Dermatologist Yesterday And He Suggested I Use Humira Injections. How Does It Work And Is It Safe? Side Effects?

A myHSteam Member asked a question 💭
Franklin, VA
A myHSteam Member

I've been on Humira for almost a year. It's worked very well for me, I rarely have any flares at all now and when I do get one it's small and goes away quickly. I haven't had any unpleasant side… read more

February 22
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