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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Has Anyone Ever Taken The New HS Drug Cosentyx?

By A myHSteam Member 28 answers

How Do Beverages With Caffeine Affect Your HS?

By A myHSteam Member 58 answers

What HS Symptoms Keep You Up At Night?

By A myHSteam Member 51 answers

What's A Common Misconception About HS?

By A myHSteam Member 42 answers
2272 questions

Anyone Getting Dark Patches On Top Of Their Feet. I Have Diabetes And Have To See My Dr. Next Week. Hope It’s Not Related To My Diabetes.🥺

A myHSteam Member asked a question 💭
Long Beach, CA
A myHSteam Member

Hidradenitis suppurativa stage 3 2011 .come frist. Then diabetes come next 2018

February 1

Humira Or Simlandi Users

A myHSteam Member asked a question 💭
Alberta Canada

When did you start noticing a difference after starting Humira/ Simlandi? I just got my first dose of 180 yesterday they said about 3 weeks before I notice a difference but I wanted to see if anyone has a different experience with timeline.

A myHSteam Member

Hi I’ve been on it for 3 years and my flares were managing in the beginning but now my body has became stagnant. So it’s not fighting off any of the newer flares the medication just keeps it at bay… read more

February 4

Hello Hope Everyone Is Doing Ok. Struggling At The Moment To Be Honest. Can I Ask You Guys What Is Deroofing? Keeping You All In My Prayers

A myHSteam Member asked a question 💭
Crawley, UK
A myHSteam Member

Hello! I'm sorry to hear you're struggling. Deroofing, also known as unroofing, is a surgical procedure used to treat hidradenitis suppurativa (HS). Here's a detailed explanation:

- Procedure
- A… read more

July 28

Has Anyone Found A Very Good Doctor For Treating Your HS In NJ ? I Am Going Into NY To See Someone But It Is Becoming Just Too Much .

A myHSteam Member asked a question 💭
Ocean, NJ

Help Please

A myHSteam Member asked a question 💭
Alberta Canada

I have a sore that is currently flaring in my bikini line, I cannot inject it with the kenalog for another 2.5 weeks - this is what usually works best for me. I tried the Vicks idea, resorcinol cream, and heat pack. Nothing is working this time! Any help would be greatly appreciated!

I am starting simlandi today but I need some relief now

A myHSteam Member

When I switched to boxer briefs (for women), it slowed the and reduced the number of that presented at the same time. I’ll have to look at the ones on Amazon, but I get mine from TomboyX. They have… read more

July 28

Has Anyone Used Winlevi Cream ? If So How Is It Working For U ? What Do U Use As Far As Covering Up The Breakout Using That Cream

A myHSteam Member asked a question 💭
Los Angeles, CA, CA

What Are You On For Extreme Pain. My Tramadol And Hydrocodone Are Not Working At All

A myHSteam Member asked a question 💭
Everly, IA

I'm advanced stage 3

A myHSteam Member

I think you do Richard.......I find itching comes from what leaks when it sits on your skin. I have a ton of facecloths and run one under hot water and wipe the itchy area and it goes away. I also… read more

February 1

Can I Drink Alcohol When Taking Doxycycline? Even One Or Two On A Night Out Will It Do Any Harm?

A myHSteam Member asked a question 💭
Northern Ireland
A myHSteam Member

Mixing alcohol with certain medications used to treat hidradenitis suppurativa (HS), including antibiotics like doxycycline, can lead to potentially dangerous interactions. Here are some key points… read more

July 27

Do You Use Aloe Vera On Open Flares?

A myHSteam Member asked a question 💭
Lake Charles, LA

I have some aloe vera gel (couldn't find the oil) but 99% of my flares are open and draining.

A myHSteam Member

I ain’t BS’n🤣 Sula.

July 27 (edited)

Does HA Leads To Any Type Of CANCER ??

A myHSteam Member asked a question 💭
Indian, AK
A myHSteam Member

Hidradenitis suppurativa (HS) can increase the risk of certain types of cancer, although the overall risk remains low. Here are some key points:

- Chronic Inflammation: HS causes chronic… read more

July 27
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