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Any Suggestions On Medications To Ask Dermatologist For My Hs
So I got a new referral to a new dermatologist I see next month as my current one was never helpful or willing to try much. I can not take humira as it lowered my immune system to much and put me in hospital for 2.5 months... I was wondering if there is any other injections or pills that I should ask about when I see them. Right now I do clindamycin topical but doesn't seem to help much when in active flare. Also curious if insurance would maybe approve laser hair removal for my spots i flare… read more
Ok will do thank you ☺️
Anyone Have Advice On Mitigating Pain From Flares On Inner Thigh? It Hurts To Even Walk.
I have migrating pain from my armpit flair up through my biscep down to my elbow.
Any Suggestions For New Or Uncommon Treatments??
Hello! I've suffered with HS for about as long as i can remember, i didnt get diagnosed until age 18 though because i refused to go see a doctor as i have acne anyway so i assumed thats what it was. i am currently 23 and i still suffer with severe HS along with cooccuring Pyoderma gangrenosum. ive tried birth control pills, antibiotics, biologics, vitamins, diet changes, lifestyle changes, antibacterial soap, ive even had mini unroofing, and unroofing procedures done and nothing ever helps… read more
Omg girl I am so sorry to hear all that. I'm sorry I don't have any answers for you but I just wanted to say I wish you well and I pray things get better for you!
What Type Of Medication Is Anyone Using For The Flareups? Do You See A Decrease From The Medication?
My Insurance Will No Longer Pay For Humira. Since Now There Is Generic For Humira, She Had To Put Me On Hyrimoz. Does Not Work As Well.
Already had 1 breakout since the switch. Anyone else incur this problem?
I'm so sorry to hear the hyrimoz isnt working as well. I was really hoping it would work for people for how much cheaper it is
Hi Warriors. I Wanted To Know If Anyone Had Deroofing Surgery?
I am having a Deroofing surgery. My surgeon said HS will never heal if you have a lot of tunneling. I have tunneling everywhere. I go in January I will let everyone know how is it. It's supposed to clear my HS along with Sterlara.
I had this surgery and it improved my quality of life drastically. However the recovery process was very difficult. It took almost a year for all of my wounds to heal. I had 4 done at once. Also, the… read more
All My Groin Sufferers... How Do You Keep On Living? I Want To Die. I Think About Suicide EVERY SECOND OF EVERY DAY 😭
I have had hs for 7 years (diagnosed 6 years ago but refuse to see another doctor or spread my legs to one) because I'm soooo fucking embarrassed I don't even want a doctor to look at me. I know after this many years they will judge me
My whole groin (outer vagina) looks like a rotting steak with maggot holes everywhere. I smell like rotting meat. My response to all of this is doing EVERYTHING and anything that makes it worse because I'm depressed to the point of unaliving myself. I… read more
I have had HS for 50 years. It is a disease. Yes it is embarrassing but you need to get on a good anti-depressant and there are medications that can help. Find a Derm who actually knows what they… read more
Has Anyone Done The Injections And If So Does It Work? And Is It Painful To Get? And How Often Do You Have To Get The Injections?
Thank you
Has Anyone Ever Tried A Infusion Called Entrapenem I Am On Remicade But It Not Controlling My Flare Ups Like It Should
Paige7 i seen the reviews and they were all good. Try it they have different ones for your type of HS and other skin condition.
Has Anyone Tried Non Traditional Medicine Or Surgery Options To Deal With Stage 3 HS?
If you are stage3 HS patient then, can you write quick tips for others if anything is working with you? Remicade, Humera, Stellara are all options but have had many side effects but are there an new biologicals working for you as none of the above have helped me. Also share your recovery period experience or if you are willing to connect directly as have few questions about it
CO2 laser surgery has been the most effective for me. Did Humira for a year and did but then was no longer effective for me. Doxycycline is no the strongest if I get an abscess but must take right… read more
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