Anyone Have Advice On Mitigating Pain From Flares On Inner Thigh? It Hurts To Even Walk.
I have migrating pain from my armpit flair up through my biscep down to my elbow.
Any Suggestions For New Or Uncommon Treatments??
Hello! I've suffered with HS for about as long as i can remember, i didnt get diagnosed until age 18 though because i refused to go see a doctor as i have acne anyway so i assumed thats what it was. i am currently 23 and i still suffer with severe HS along with cooccuring Pyoderma gangrenosum. ive tried birth control pills, antibiotics, biologics, vitamins, diet changes, lifestyle changes, antibacterial soap, ive even had mini unroofing, and unroofing procedures done and nothing ever helps… read more
Omg girl I am so sorry to hear all that. I'm sorry I don't have any answers for you but I just wanted to say I wish you well and I pray things get better for you!
What Type Of Medication Is Anyone Using For The Flareups? Do You See A Decrease From The Medication?
My Insurance Will No Longer Pay For Humira. Since Now There Is Generic For Humira, She Had To Put Me On Hyrimoz. Does Not Work As Well.
Already had 1 breakout since the switch. Anyone else incur this problem?
I'm so sorry to hear the hyrimoz isnt working as well. I was really hoping it would work for people for how much cheaper it is
All My Groin Sufferers... How Do You Keep On Living? I Want To Die. I Think About Suicide EVERY SECOND OF EVERY DAY ðŸ˜
I have had hs for 7 years (diagnosed 6 years ago but refuse to see another doctor or spread my legs to one) because I'm soooo fucking embarrassed I don't even want a doctor to look at me. I know after this many years they will judge me
My whole groin (outer vagina) looks like a rotting steak with maggot holes everywhere. I smell like rotting meat. My response to all of this is doing EVERYTHING and anything that makes it worse because I'm depressed to the point of unaliving myself. I… read more
I have had HS for 50 years. It is a disease. Yes it is embarrassing but you need to get on a good anti-depressant and there are medications that can help. Find a Derm who actually knows what they… read more
Has Anyone Done The Injections And If So Does It Work? And Is It Painful To Get? And How Often Do You Have To Get The Injections?
Thank you
Has Anyone Ever Tried A Infusion Called Entrapenem I Am On Remicade But It Not Controlling My Flare Ups Like It Should
Paige7 i seen the reviews and they were all good. Try it they have different ones for your type of HS and other skin condition.
Has Anyone Tried Non Traditional Medicine Or Surgery Options To Deal With Stage 3 HS?
If you are stage3 HS patient then, can you write quick tips for others if anything is working with you? Remicade, Humera, Stellara are all options but have had many side effects but are there an new biologicals working for you as none of the above have helped me. Also share your recovery period experience or if you are willing to connect directly as have few questions about it
CO2 laser surgery has been the most effective for me. Did Humira for a year and did but then was no longer effective for me. Doxycycline is no the strongest if I get an abscess but must take right… read more
What Biologic Medications Have You Been Put On To Help With Your Case Of HS?
I have been on Humira, first time was for two years with no improvement, things actually got worse. I then restarted Humira after being off of it for almost a year, and immediately things got worse from what progress I'd had previously. I am seeing a new dermatologist who seems to be more knowledgeable about HS than any other doctors I have seen so far. His plan is for me to be on IV antibiotics (infusion antibiotic) for six weeks and then start Selara. Has anyone had luck with that?
I have been on Remicade infusions for a couple months now with no improvement, but the doctor upped my dose and says sometimes it takes time.
Covid
Hi Team. Has anyone ever got the Covid vaccines and the Covid Boosters? Also, there's another Covid injection. Would you get that and if not, why not?
I mostly agree with you Kelly. I prefer a natural method, and letting your immune system do what it supposed to. I did have three vaccines, probably out of fear of covid. I live in a sparsly… read more