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Please Tell Me How You Manage The Ginormous, Painful Ones On Your Inner Thighs Or Butt Without Popping Them To Relieve The Pressure?
Warm baths help a lot, it just takes time so be patient. clean the boils with Hibiclens. Sometimes I even I do bleach bath just pour like a half cup in the tub with water it helped with the one that… read more
Does Anyone Else Get HS Flares On Or Near Their Eye? How Do You Manage Them? Also How About In Your Hair On Your Head?
My son is African American and I has always had very dry skin. The Cosentyx shots have been helping with flares but gave him plaquing in areas on his face, ears, hair and the back of his hands. Any advice?
I just started consentxy recently and have noticed eczema like spots on my arms, chest and face.
Hi. I Would Like To Start Dating Again. How Do You Explain The HS, If You Care For A Person That You Are Dating?
Explaining HS to someone you care about can feel overwhelming, but honesty and simplicity are key. Start by giving a brief explanation of what HS is, emphasizing that it’s not contagious or sexually… read more
Women With HS, Do You Notice Flare Ups Before Or In The Early Days Of Your Period? Is There A Link?
Hello Fatima. Yes, in my case. I take progesterone everyday and it has cured my endometriosis and my HS. But the sad thing is that progesterone can give brain tumors.
Best regards
What Products Or Practices Help Ease Your HS Symptoms? 🧴🔥
Hidradenitis Suppurativa can be challenging, but finding the right treatments and routines can make a difference. Share what’s helped you find relief and manage symptoms. 💬 #Question
Love yall’s suggestions from your own experiences. Thanks mainly to our team, I began using vitamins over two years ago, use liquid antibacterial soap instead of bar soap, watching my intake of sugar… read more
How Do You Tame Your Hs? What Type Of Treatments Do You Take? How Do You Deal With The Pain?
My diet. I didn’t know how effective it really was until I went plant base and juicing it helps to control the daily symptoms of pain and smell from the wounds. Colonics, which I haven’t gotten in… read more
Hi! What Are You Putting On Your HS Lesions, As Far As Ointments So Wound Won’t Stick To Bandage?
Welcome 🙏 I hope 🤞 it has helped you out and you always know we’re I am if you ever need any sort of help good luck 🤞 with everything take care of yourself baz 🤞👍
Have A Seat? (Got Your Attention Huh)
Here we go to all of my HS family depending on where your HS is when you sit down do you sit down easy And gently find the rite spot that doesn't hurt to bad and someone comes up to you and ask is everything ok well for me I lie and say my back is hurting because it's a pain in the ass to tell them what's really going on and if I have to sit for a long time that can get to be torturous for me don't get me wrong I'm not embarrassed of my HS (I use to be) but sometimes it's just easier to tell… read more
Its a lie of omission... but when I have to gingerly move or sit, and someone asked me if I am okay, I respond that I have an autoimmune condition and that I am very sore.
Leaking When I Sit Down
What are some things you guys use to make sure your skin does not leak when you sit down, I am always scared to dress nice or sit down somewhere because my skin leaks so bad in my buttocks and groin.
I have used all types of things but sometimes I guess it finds its way around the barriers, I have used pads(usually need 3), the pads for people with incontinence...oh and if I don't use a wash clothe what do you use to shower?
Leaking boils or abscesses can be a common and distressing symptom of hidradenitis suppurativa (HS). This can make daily activities like sitting down uncomfortable and challenging. Here are some… read more
For Those Of You And Humira, How Do You Feel Just Before It's Time For You To Do Your Next Shot?
Just kind of wondering how people feel when it's a day or so before you shot is due do you start feeling funky or how do you feel for the first couple days after you take it
Hi Coda. I use Humira and I don't feel anything the day before, the day of, during or after the injection. I have no swelling or soreness 😊
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