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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does The Cold Affect Your HS?

By A myHSteam Member 34 answers

Which HS Symptom Surprised You The Most?

By A myHSteam Member 50 answers

What Advice Would You Give To Someone Newly Diagnosed With HS?

By A myHSteam Member 30 answers

Has Anyone Ever Taken The New HS Drug Cosentyx?

By A myHSteam Member 28 answers
2268 questions

As Anybody Got Information On Having MS Along With HS At The Same Time? I Have Not Been Able To Find Anything At All On The Subject 😔

A myHSteam Member asked a question 💭
New Cumberland, WV

How Do You Go About Telling Your Partner You Have HS? I Want To Be Intimate With Her But I’m Very Very Nervous & Embarrassed. :(

A myHSteam Member asked a question 💭
Salt Lake City, UT
A myHSteam Member

I have been with my husband for 4 years and i told him about it in very simple terms and allowed him to ask questions and made sure to stress that it's not an STD or anything like that but and… read more

July 22

Hi Guys, I'm Looking To Find Out What Support We Have In The UK, Can't Seem To Find Anything, Including Websites. Can Anyone Help?

A myHSteam Member asked a question 💭
Bournemouth, UK

I've had HS since 2002.

A myHSteam Member

Hey
I think this has been an error, I'm looking to gain support for DV.
Thanks.

July 19

Dealing With Odor?

A myHSteam Member asked a question 💭
Bremerton, WA

I have one draining in my right armpit and it’s quite painful. Usually when it gets like that I’ve found success with Vicks VapoRub when it comes to pain and drainage. It also helps me with odor since Vicks has an overpowering smell. But this particular abscess smells really bad even with the Vicks, dressings and layers. I may be self conscious and hyper aware, but does anyone have any solutions for it? It feels so embarrassing, I am trying to make a good impression at my internship and I hate… read more

A myHSteam Member

Caster oil!

July 16

I Want To Know Has Anyone's Symptoms Changed Over The Seasons And Years? What Treatments Have You Tried?

A myHSteam Member asked a question 💭
Martinsburg, PA

For example is there speciality doctors for this besides dermatologist

A myHSteam Member

Some individuals with hidradenitis suppurativa (HS) have reported changes in their symptoms over the seasons and years. For example, one person mentioned that pregnancy hormones made their skin go… read more

July 15

When I Get A Flare Up Do I Just Put The Lotion On It They Gave Me.i Can't Run To Doctor Every Time

A myHSteam Member asked a question 💭
Orrville, OH
A myHSteam Member

Managing hidradenitis suppurativa (HS) flare-ups involves a combination of home care and medical treatment. Here are some tips from the knowledge base:

- Skin Care at Home: Keep the area clean with a… read more

July 15

Does Anyone Know If Anyone Or Anyplace Is Working On A Cure??

A myHSteam Member asked a question 💭
Northfield, MN
A myHSteam Member

A lot of great information! Thank you! I’ll definitely be reading your sources.

July 18

Does Anyone Get A Sore On Their Stomach

A myHSteam Member asked a question 💭
Oshkosh, WI
A myHSteam Member

No ! Right , thank god !!

July 14

Do A Lot Of You Guys Have Therapists? I've Been Thinking Of Getting One Because My HS Is Really Effecting My Mental Health Lately.

A myHSteam Member asked a question 💭
Ireland, IN

I've had HS for 8 years now. Even though it's the summer I'm still depressed because of my HS. It just sucks. I only get them on the groin area which is just so uncomfortable and hard to explain to others. Most days I can't even walk without pain.

A myHSteam Member

i understand and you're not alone ♥ i have BPD (borderline personality disorder) and Bipolar depression type 1 so i understand the toll that suicidal thoughts have and when you've never had them… read more

July 22
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

My Son Has Had HS Now For Years And Recently Was Iagnosed As T1 Diabetic. I've Learned They Go Together Often, To My Surprise! (21yrs Old).

A myHSteam Member asked a question 💭
Fall River, MA

My gut feeling is that he may have been diabetic for many years but undiagnosed and untreated. He has, for many years since becoming a teanager (puberty stage), gone through episodes of nausea, vomitting, abdominal discomfort, severe fatigue, headaches and other symptoms lasting anywhere from 4 days to 3+ weeks and counting (current situation) before his symptomslet up and there's some relief.

He has been seen by every doctor-PEDI, Endo, GI, Dermatologist and has had so many test, blood and… read more

A myHSteam Member

I'm sorry to hear about your son's diagnosis. It's true that hidradenitis suppurativa (HS) and diabetes can be connected. Here are some key points from the knowledge base:

- Connection: People with… read more

July 11
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