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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With HS In The Heat?

By A myHSteam Member 32 answers

What Are Your Go-to Remedies For HS Flare-ups? 🔥🧴

By A myHSteam Member 22 answers

What HS Symptoms Keep You Up At Night?

By A myHSteam Member 51 answers

How Do Beverages With Caffeine Affect Your HS?

By A myHSteam Member 58 answers
2268 questions

Does Anyone Use Natural Remedies?if So Please Help Me For Late Stages Of HS

A myHSteam Member asked a question 💭
Corpus Christi, TX
A myHSteam Member

I was not keen on cutting out everything lol we’re all human. I found a treatment that worked well for me and incorporated tumeric, zinc, omega 3, vitamin c and vitamin d into my daily routine. I… read more

June 15

What Advice Would You Give To Someone Newly Diagnosed With HS?

A myHSteam Member asked a question 💭
San Francisco, CA

Last week was Hidradenitis Suppurativa Awareness Week. How do you maintain your mental and physical health?

A myHSteam Member

Follow through with all doctor’s instructions even when you don’t have any lesions. If you sweat like crazy after doing something (gardening for me) shower immediately. Use Hibacleanse. I get it… read more

July 24

How Do You Guys Deal With The Pain Of Cleaning Open Wounds?

A myHSteam Member asked a question 💭
Bremerton, WA

I have a lot of broken skin, open wounds, and decently sized holes. I’ve developed a bit of anxiety around having to clean them every day, long term. Does any one have any advice on how to combat that anxiety and be more efficient?

A myHSteam Member
June 27

What Can I Do To Make The Healing Of My Double Armpit Surgery Better?

A myHSteam Member asked a question 💭
North Collins, NY

The sleeping experience is pretty rough i have used nyquil to sleep cuz it helps with pain while i sleep. during the day i take 500mg of Tylenol and 400mg motrin every 2 hours alternating and that helps for the most part but omg do i feel the stiches way more then when i had my first armpit surgery in February. this time it was my full armpit on both sides and that was done last Friday and i have a follow up appointment on this coming Tuesday but i need help.

A myHSteam Member

Hello Aquila. I hope you feel better real soon. Take care and God bless 🙏🏿

June 13

Can Bleach Hurt Open Wounds?

A myHSteam Member asked a question 💭
Florida, NY

I've read about others using bleach in their bath water. I have a lot of open wounds and I don't want to make matters worse. They itch like CRAZYYYY right now so I'm just looking for something to ease it.

A myHSteam Member

Just use alittle bit of bleach not much maybe like a caps full try adding some espom salt with it green alcohol peroxide I hope this helps this was what my grandma put in the tub when I had very bad… read more

June 26

If It Good To Let Areas That Have Been Draining On And Off Open To The Air Or Should That Stay Covered? What Helps Them Heal Faster?

A myHSteam Member asked a question 💭
Gladewater, TX
A myHSteam Member

Wound wash and impregnated petroleum gauze

June 14

Help With At Home Treatment.

A myHSteam Member asked a question 💭
Cincinnati, OH

Hi everyone! Long story, but I lost my insurance at the beginning of this year. I had my last Remicade infusion in February and the only thing I’m on for HS is steroid cream and antibiotic lotions and metformin to be honest I’m not too sure why I’m on metformin. I do not have diabetes, but will continue to take it until I go back to the doctor, open enrollment at my job is not until November. My HS has gotten extremely worse I was at a stage two and Remicade was not really working well, but I… read more

A myHSteam Member

Hello everyone...I use the Salon Pas pain patches....It does help and when it burst the patch keeps the stuff from leaking on my clothes!

June 14

Has Anyone Used African Black Soap To As A Preventative? I Am Using An Acne Wash My Dr Suggested But It's Not Helping So Much.

A myHSteam Member asked a question 💭
Louisville, KY
A myHSteam Member

Hi. Im Rasoul, and am stage 3. Can you give me the names of the zinc and sulfer soap yiu use? Im stuck on Dial, but tends to leave my skin super dry. Looking for an alternative. Thanks

June 12

Does This Condition Ever Burn Out? Mine Started In 1976 At 21, Now I'm 68 And Still Have Breakouts

A myHSteam Member asked a question 💭
Houston, TX
A myHSteam Member

Hidradenitis suppurativa (HS) is a chronic condition, and its course can vary greatly from person to person. While some people may experience periods of remission, others continue to have breakouts… read more

June 8

Yes. Can You Tattoo The Bad Spots On Your Body?

A myHSteam Member asked a question 💭
Stone Mountain, GA
A myHSteam Member

Tattooing over areas affected by hidradenitis suppurativa (HS) is generally not recommended. The skin in these areas is often sensitive, prone to flare-ups, and may have active lesions or scarring… read more

June 8
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